My husband has lymphedema and has been badly let down by our district nurses to the point i was trying to treat it myself, he has pressure sores and i was using the right dressings (actiform cool gel dressings) on his left leg but he had a bigger sore on his right leg, then he tripped and dislocated his right ankle-leaving a wound to the bone. They feel the need to amputate which we understand and we are trying to get his skin to improve so that it can be a below knee, but i can't find anyone else who is in the same position! in the uk this is a pretty rare case but i just would like to chat to someone who has been thru amputation, who has lymphedema. I don't know if you can help but i thought i would ask.
thanks so much (ps he is only 38yrs old)