Hi. I have secondary lymphoedema in both legs with the left being the worst. I was treated surgically for cervical cancer almost five years ago and have been battling this ever since. I wear very high grade compression Elvarex tights (class 2), thigh high (class 3) and toe glove (class 1). I have a lot of fluid and fibrosis and there is at a minimum a 50% difference between my legs. I am not receiving MLD as it is not available publically in my treating hospital or basically anywhere within a 100 miles radius of me (in Ireland) and I have already spent thousands on private treatment over the last few years and I am broke with it! The last (private) session of MLD I had was three months ago and that was the first in a year. I have been to the Foeldi Clinic in Germany almost two years ago and had great results, but alas, nothing since!
I have been having really sore and uncomforable symptoms the last couple of months that have gotten worse in the last two weeks. Basically, I have real pain in my left flank and lower abdomen, back ache and discomfort down into the top of my left leg. I have also been having really bad reflux the last couple of months and someone suggested it may be the pressure of my tights around my tummy. This is worst when I am sitting. It's gotten so bad I can only sleep on my back. Worst of all, I have a desk job! I have spoken with my consultant who is scheduling an MRI which is a relief.
I am wondering if anyone else has had similar symptoms. My consultant knows/ has seen very little of lymphoedema. I don't know when the MRI will take place and in the mean time, I'm really concerned. My private MLD physio will not treat me if there is a risk that there is anything going on internally so I'm at a loss as to what I should do. My instinct is that this is something to do with the fluid in my belly and the pressure of my tights. However, I CAN NOT avoid wearing my tights - I have rapid refill and without MLD available to me, it would be a disaster.
Any advice?! Thanks everyone.