Has anyone successfully been awarded DLA regarding their Lymphoedema.? I have abdominal & bi lateral lower limb lymphoedema for the last 18 years which has deteriorated greatly over the past 3-4 years.I have increased chronic leg, feet and hip pain and limited mobility. following MLD in July which did decrease some of the limb volume, i continued to have back pain also, a recent MRI scan has identified bone marrow edema.I have ESA & DLA tribunal hearings approaching.I dont hold out alot of hope, has anyone else had a positive outcome ?
Just wanted to update this post.i lost both Tribunal Appeal hearings.i hoped to be able to use the funds for weekly MLD treatment.glad I tried though.
Hi, my son is two and he has had DLA since he was 1. He gas lymphodema in his hand, genitals and abdomen, also in his throat. He also has other problems though which is intestinal lymphangiectasia and hypogammaglobulinema. At first he was declined DLA but I wasn't happy with that and appealed. He needs a lot more care that other children his age and mainly because of the bandaging and mld. I think it's because it's not that popular and people aren't sure what care he needs. I just made sure I had all supporting drs letters. I hope you get it sorted.
Hi, I was given DLA for arthritic/mobility problems. When I was diagnosed with breast and chest wall lymphoedema I applied for increase to care component as some days certain jobs are impossible. However I was turned down on the grounds that cooking, cleaning, ironing did not warrant and increase. Some days using an oven is impossible, because my arm is extremely week, minor burns are a way of life. Which is not good for someone with Lymphoedema. Even lifting the kettle can be a chore. I had very good support from my Doctors, Macmillan and Welfare benefits officers but was still turned down. Good luck with your claim.
Hello Novelist2, thankyou for your response, i empathise with your difficulties.well my DLA appeal was cancelled due to a medical rep not being available, poss will be rescheduled in Jan.and sadly i lost the ESA appeal last week, although i was awarded 12 points instead of the 0 award from ATOS healthcare.But you need 15 points to get ESA, never mind all your realistic inability to function ! So now i must start again and reclaim ! What a sad, mad system !
Hello Xb3ckyx, thankyou for your response, i empathise with your ongoing difficulties that your son experiences, i do hope he is in good spirits.i would imagine daily life is challenging enough without having to take on this mad battle well this crazy system.my DLA appeal was cancelled due to a medical rep not being available, hopefully it will be rescheduled for the new year. Sadly i lost the ESA appeal, although i was awarded 12 points instead of the 0 award from ATOS healthcare.But you need 15 points to get ESA, never mind all your realistic inability to function ! So now i must start again and reclaim ! What a demorilising system !