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Living with Lyme Disease UK

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Ten years of symptoms?

This is my first post in this part of Health Unlocked after 15 months in the British Heart Foundation section. In 2014, I had a nasty insect bite when...

This is my first post in this part of Health Unlocked after 15 months in the Bri...

Taviterry

•1 month ago

5 Replies

I'm currently trying Cryptolepis Sanguinolenta for Lymes,

Hi everyone I had the bulls eyes tick bite in July, with onset of lymes symptoms ie, feverish shivery chills unable to sleep and a really grumpy tummy with...

Hi everyone I had the bulls eyes tick bite in July, with onset of lymes symptoms...

Carnations21

•2 months ago

1 Reply

Lyme Test

Hi guys, I spent last Sumner working in the Highlands of Scotland and was often in the fields and forests - colleagues were finding ticks on their bodies but...

Hi guys, I spent last Sumner working in the Highlands of Scotland and was often...

Tango2

•11 months ago

1 Reply

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Going down down down

I won’t bore anyone with the full length story, as so many suffering from Lyme disease and related secondary conditions have been through similar experiences...

I won’t bore anyone with the full length story, as so many suffering from Lyme ...

Elenaleeuk

•2 years ago

1 Reply

Suboxone for Pain

Has anyone taken Suboxone strips for terrible Lyme headaches? Did they help? How much alleviated pain? I have a few strips but haven't tried yet because I...

Has anyone taken Suboxone strips for terrible Lyme headaches? Did they help? How...

OKShakespeare

•2 years ago

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Can gabapentin be used to treat balance issues?

I was diagnosed with Lyme disease in June, 2021, and was treated with three weeks of oral antibiotics. However, the disease developed into neuro-Lyme. After a...

I was diagnosed with Lyme disease in June, 2021, and was treated with three week...

Strathspey1

•2 years ago

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Massive headache, Dizzyness

I am a new member. I have Lyme and have been symptomatic since 1992 when I removed an engorged tick. I was very sick but diagnosed with a virus. Some virus! It...

I am a new member. I have Lyme and have been symptomatic since 1992 when I remov...

OKShakespeare

•2 years ago

2 Replies

SOT therapy for Lyme from Greece

Anyone here begun SOT therapy? I was just infused and would like to know symptoms.

Anyone here begun SOT therapy? I was just infused and would like to know sympto...

blms

•3 years ago

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I'd like to know if taking Doxy will ever help Lyme. Or, should I take Ivermectin?

Will ivermectin help Lyme?

JonW1954

•4 years ago

1 Reply

How accurate is a Lyme test ran by the GP?

Hi. I have been having medically unexplained symptoms constantly for almost 4 years now with every test possible other than a test for Lyme. I just wanted to...

Hi. I have been having medically unexplained symptoms constantly for almost 4 ye...

Belalf

•4 years ago

1 Reply

Infrared Light & Lyme Disease

Has anyone tried using infrared light or infrared sauna to reduce pain and inflammation? I've seen quite a bit online about how infrared light can help reduce...

Has anyone tried using infrared light or infrared sauna to reduce pain and infla...

Jakki-82

•4 years ago

3 Replies

Help please with swelling/build up of fluid and severe pain

This is on behalf of a family member - has anybody had symptoms like this please? It has been *suggested* possible Lyme Disease. ⚠️8 weeks ago in middle of...

This is on behalf of a family member - has anybody had symptoms like this please...

MillyMollyMandy136

•4 years ago

4 Replies

Is it safe for Lyme disease patients to take a COVID-19 vaccine? Anyone had a vaccine yet? Any reactions or side effects?

I'd appreciate hearing any first-hand experiences from Lyme patients who have taken a COVID-19 vaccine. Does your Lyme doctor recommend taking the vaccine? I...

I'd appreciate hearing any first-hand experiences from Lyme patients who have ta...

NCWVLyme

•4 years ago

5 Replies

Lyme Disease missed

So, I got bit by what I call small fleas/mosquitoes. I know what a tick looks like. I developed a silver dollar sized red “bite” I took 50 mg Benadryl and it...

So, I got bit by what I call small fleas/mosquitoes. I know what a tick looks li...

Hidden

•4 years ago

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Tick bite please help

Hi everyone I came home from a walk and found crawling tics on my dog I also have a bite which 10 hrs after walk has a white circle around it Is this a Lyme...

Hi everyone I came home from a walk and found crawling tics on my dog I also h...

Callumlee123

•4 years ago

5 Replies

RICKETTSIA THROUGH LYMES DISEASE

Hi,total newb looking for as much info on lymes disease/rickettsia.(im not lazy ive been reading day and night for weeks btw)my son became unwell several weeks...

Hi,total newb looking for as much info on lymes disease/rickettsia.(im not lazy ...

Ianox

•4 years ago

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Vomiting immediately after taking Doxycycline

Vomiting immediately after taking Doxycycline I took it on an empty stomach and 20 mins later vomitted water only no pills. I had a slight taste of the...

Vomiting immediately after taking Doxycycline I took it on an empty stomach and ...

Hidden

•4 years ago

3 Replies

Vomiting Doxycycline will it work?

Vomiting immediately after taking Doxycycline I took it on an empty stomach and vomitted water only no pills. I had a slight taste of the antibiotics (sorry I...

Vomiting immediately after taking Doxycycline I took it on an empty stomach and ...

Hidden

•4 years ago

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Chronic Lyme Disease

Hello all 😁 Is it possible to have Lyme Disease for around 50 years? If so, can it still be treated successfully?

Hello all 😁 Is it possible to have Lyme Disease for around 50 years? If so, ca...

bluehaven201

•4 years ago

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Cambridge University survey / MCAS

Hi all, A group of Cambridge University students is doing a survey on MCAS/ histamine intolerance patients. They reached out to me and asked me to circulate...

Hi all, A group of Cambridge University students is doing a survey on MCAS/ hist...

sq1111

•5 years ago

1 Reply

Mast cell activation, a common comorbidity to Lyme

Hi everyone! I'm sharing the first part of my interview with Dr. Tina Peers on her approach to treating mast cell activation syndrome, a common comorbidity of...

Hi everyone! I'm sharing the first part of my interview with Dr. Tina Peers on h...

sq1111

•5 years ago

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Help appreciated

Hi all. I strongly believe I've been misdiagnosed by a rheumatologist 5 years ago with chronic widspread pain syndrome but actually have had Lyme disease for...

Hi all. I strongly believe I've been misdiagnosed by a rheumatologist 5 years ag...

Lydia200

•5 years ago

1 Reply

Atlas Orthogonal Practitioner

Hi, Thinking of trying Atlas Orthogonal for migraines and dizziness. Can anyone suggest where in the UK I can get this done. Many thank

Hi, Thinking of trying Atlas Orthogonal for migraines and dizziness. Can anyone ...

shilling11

•5 years ago

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Confused only igg 18, 39 and 41 reactive. Test results states negative.

I recently had the Western Blot test with IGG bands 18, 39 and 41 reactive. None of the IGM bands were reactive. My Ebstein bar test is also reactive. I...

I recently had the Western Blot test with IGG bands 18, 39 and 41 reactive. N...

CW12

•5 years ago

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Podcast episode about Lyme Disease

Stuff you should know on Lyme Disease Edited by Admin: Please see direct link here (copy & paste the following without the space) and it seems to only...

Stuff you should know on Lyme Disease Edited by Admin: Please see direct link ...

nanda29

•5 years ago

1 Reply

Lyme Testing

Hi , I have been online most of today looking at tests here in the UK and overseas trying to decide the right test to take to diagnose /rule out Lyme . I...

Hi , I have been online most of today looking at tests here in the UK and over...

Thyroiddown

•5 years ago

8 Replies

Pretty frightened!

Hi All. In early June I went to Exmoor, and our dogs got covered in spider like ticks. Fast forward a week and I had an itchy bite on my back, which then had...

Hi All. In early June I went to Exmoor, and our dogs got covered in spider like ...

Hello1986

•5 years ago

1 Reply

Lyme Disease and Liver Issues

I had a Lyme diagnosis two years ago and was treated with 21 days of doxy. Now I have been diagnosed with Fatty Liver disease and was wondering if there could...

I had a Lyme diagnosis two years ago and was treated with 21 days of doxy. Now ...

KateeKittee

•5 years ago

9 Replies

PETITION: UK Government should respond to John Caudwell's £1M offer to help fund Lyme Research

Recently (26th & 27th June 2019), John Caudwell has offered the UK Government over £1M for Lyme Disease research on various media sources, on the...

Recently (26th & 27th June 2019), John Caudwell has offered the UK Government ov...

Mdaisy

Administrator•5 years ago

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John Caudwell discussing Lyme Disease on Jeremy Vine on 5 yesterday (26/6/19)

Did you see John Caudwell, Founder of Phones4U on Jeremy Vine on 5 discussing Lyme Disease? If not, don't worry you can watch it via the link below; Click...

Did you see John Caudwell, Founder of Phones4U on Jeremy Vine on 5 discussing Ly...

Mdaisy

Administrator•5 years ago

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Posts - Living with Lyme Disease UK | HealthUnlocked

Living with Lyme Disease UK

Ten years of symptoms?

I'm currently trying Cryptolepis Sanguinolenta for Lymes,

Lyme Test

Going down down down

Suboxone for Pain

Can gabapentin be used to treat balance issues?

Massive headache, Dizzyness

SOT therapy for Lyme from Greece

I'd like to know if taking Doxy will ever help Lyme. Or, should I take Ivermectin?

How accurate is a Lyme test ran by the GP?

Infrared Light & Lyme Disease

Help please with swelling/build up of fluid and severe pain

Is it safe for Lyme disease patients to take a COVID-19 vaccine? Anyone had a vaccine yet? Any reactions or side effects?

Lyme Disease missed

Tick bite please help

RICKETTSIA THROUGH LYMES DISEASE

Vomiting immediately after taking Doxycycline

Vomiting Doxycycline will it work?

Chronic Lyme Disease

Cambridge University survey / MCAS

Mast cell activation, a common comorbidity to Lyme

Help appreciated

Atlas Orthogonal Practitioner

Confused only igg 18, 39 and 41 reactive. Test results states negative.

Podcast episode about Lyme Disease

Lyme Testing

Pretty frightened!

Lyme Disease and Liver Issues

PETITION: UK Government should respond to John Caudwell's £1M offer to help fund Lyme Research

John Caudwell discussing Lyme Disease on Jeremy Vine on 5 yesterday (26/6/19)

Search posts

Pinned Posts

Latest poll

Due to living with Lyme Disease, have you had any of the following?

Topics

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