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Revolade
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Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
I have to heavily increase Prednisolone and double
Revolade
. I wonder how my heart will react. Anyone else with CLL, ITP and heartfailure?
I have to heavily increase Prednisolone and double
Revolade
. I wonder how my heart will react. Anyone else with CLL, ITP and heartfailure?
Accordion
in
CLL Support
1 month ago
Roxadustat and Revolade for MPN
So my attending doctor asked me to try Roxadustat and
Revolade
these two drugs. Roxadustat can improve hemoglobin and
Revolade
can improve platelets, and effects are very good for me. But I still worry about the side effects of these 2 drugs, Roxadustat and
Revolade
.
So my attending doctor asked me to try Roxadustat and
Revolade
these two drugs. Roxadustat can improve hemoglobin and
Revolade
can improve platelets, and effects are very good for me. But I still worry about the side effects of these 2 drugs, Roxadustat and
Revolade
.
merlisa
in
MPN Voice
7 months ago
ITP and Pregnancy
Hi everyone,has anyone been pregnant while on steroids,
revolade
or any ITP related medication.How was the pregnancy,did you carry full term,is the baby 100% etc?
Hi everyone,has anyone been pregnant while on steroids,
revolade
or any ITP related medication.How was the pregnancy,did you carry full term,is the baby 100% etc?
Neolicius
in
ITP Support Association
1 year ago
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Anyone need revolade
Anyone need
revolade
25mg tablets (we bought it for my mother in law and she passed away) it would be helpful if someone really needs it , Chennai, India
Anyone need
revolade
25mg tablets (we bought it for my mother in law and she passed away) it would be helpful if someone really needs it , Chennai, India
RONALD-DASON-P
in
ITP Support Association
2 years ago
Does Revolade has a negative impact on the organs or any other part of the body?
I am in
Revolade
4 months now 75mg every day. I was wondering in which organ
Revolade
effects negative our body. As any drug you take has a negative impact somewhere.
I am in
Revolade
4 months now 75mg every day. I was wondering in which organ
Revolade
effects negative our body. As any drug you take has a negative impact somewhere.
Atlas2022
in
ITP Support Association
2 years ago
Post Splenectomy
Prednisone,,,dexamethasone.....IVIG.....Rituximab.....
Revolade
.......BUT lots of side effects. Seven months ago I had my spleen removed. Since then my platelets are hovering around 20 - 30 with no medications. I have not had any issues with bleeding or bruising. I am in my 70’s.
Prednisone,,,dexamethasone.....IVIG.....Rituximab.....
Revolade
.......BUT lots of side effects. Seven months ago I had my spleen removed. Since then my platelets are hovering around 20 - 30 with no medications. I have not had any issues with bleeding or bruising. I am in my 70’s.
Bradyella
in
ITP Support Association
2 years ago
My Experience with ITP
I have been taking
Revolade
75mg daily for the past 4 months. I have also taken various immunosuppressants like IVIG, Rituximab and Prednisolone. This hair fall is completely normal, so don't worry. I found using soaking fenugreek seeds in water and spraying that water helps a lot.
I have been taking
Revolade
75mg daily for the past 4 months. I have also taken various immunosuppressants like IVIG, Rituximab and Prednisolone. This hair fall is completely normal, so don't worry. I found using soaking fenugreek seeds in water and spraying that water helps a lot.
boredbetty
in
ITP Support Association
2 years ago
Probiotics - which ones and how many billions?!
I’m keen to try them as I do think taking the
Revolade
is causing my gut problems! Look forward to hearing from you! Thanks
I’m keen to try them as I do think taking the
Revolade
is causing my gut problems! Look forward to hearing from you! Thanks
Gabriella28
in
ITP Support Association
3 years ago
No longer in remission.
I have been on various transfusions since end of July and currently taking daily Eltrombopag (
Revolade
) amongst other medication, which is helping to keeps my bloods stronger, delaying the inevitable demise. Onwards and upwards - keep fighting.
I have been on various transfusions since end of July and currently taking daily Eltrombopag (
Revolade
) amongst other medication, which is helping to keeps my bloods stronger, delaying the inevitable demise. Onwards and upwards - keep fighting.
snoopy101
in
Leukaemia CARE
3 years ago
Im new here
I have been on
revolade
for approx two years. I am on the minimum dose of 25mg a day and my platelets are now above 150. However, I feel that
revolade
is causing me anxiety, muscle and joint pain and fatigue.
I have been on
revolade
for approx two years. I am on the minimum dose of 25mg a day and my platelets are now above 150. However, I feel that
revolade
is causing me anxiety, muscle and joint pain and fatigue.
Babaji1971
in
ITP Support Association
3 years ago
IVIG Infusions
I have been on
Revolade
for six months with no positive results. I have an IVIG every three weeks to boost my platelet count. Does anyone else have IVIG on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
I have been on
Revolade
for six months with no positive results. I have an IVIG every three weeks to boost my platelet count. Does anyone else have IVIG on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
Bradyella
in
ITP Support Association
3 years ago
Vitamin K
After taking Eltrombopag (
Revolade
) for a year and a half now I am totally familiar with the need to avoid anything with calcium and dairy for 4 hours before and two hours after taking the drug. So is it ok to take the D3/K2 tablet outside of this time frame?
After taking Eltrombopag (
Revolade
) for a year and a half now I am totally familiar with the need to avoid anything with calcium and dairy for 4 hours before and two hours after taking the drug. So is it ok to take the D3/K2 tablet outside of this time frame?
Gabriella28
in
ITP Support Association
3 years ago
Please help........new patient
Have tried Prednisone, IVIG, Dexamethasone
Revolade
and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed?
Have tried Prednisone, IVIG, Dexamethasone
Revolade
and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed?
Bradyella
in
ITP Support Association
3 years ago
Effects of count dropping
My
Revolade
got stopped 3 weeks ago as count had gone to 451 and more risk of a bloodclot on drug with count above400. My count has dropped now to 341 and I'm starting to get palpitations and short of breath. Quite an anxious feeling. Also much more tired but no bruising or bleeding.
My
Revolade
got stopped 3 weeks ago as count had gone to 451 and more risk of a bloodclot on drug with count above400. My count has dropped now to 341 and I'm starting to get palpitations and short of breath. Quite an anxious feeling. Also much more tired but no bruising or bleeding.
Millielottie
in
ITP Support Association
3 years ago
I have had ITP for 5 months and no medications have helped....Prednisone, Dexamethasone (very temporary) Revolade and Rituximab. IVIG ???
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Bradyella
in
ITP Support Association
3 years ago
Romiplastim
Hi all had to come of
Revolade
because of hair loss and thinning. Of it just over a week, platelets down to 18, felt rough. Had my first injection of Romiplastim on Friday, no side effects so far. Any feed back from any one ? Felt great on
Revolade
just hair problem and aching hips.
Hi all had to come of
Revolade
because of hair loss and thinning. Of it just over a week, platelets down to 18, felt rough. Had my first injection of Romiplastim on Friday, no side effects so far. Any feed back from any one ? Felt great on
Revolade
just hair problem and aching hips.
Bowiemolly
in
ITP Support Association
3 years ago
Side Effects of Revolade
Does anyone else get a really dry mouth and constantly clear their throat whilst taking
Revolade
. I am finding it really hard to get to sleep because of this. Can anyone advise what I can do to help with this.
Does anyone else get a really dry mouth and constantly clear their throat whilst taking
Revolade
. I am finding it really hard to get to sleep because of this. Can anyone advise what I can do to help with this.
Millielottie
in
ITP Support Association
3 years ago
side effects revolade
I have been on
Revolade
for 2 weeks and today has been horrific. Heartburn pain all day and really sore even at the back of my mouth. Has anyone else had this. I take Omeprazole every morning and this has made no difference.
I have been on
Revolade
for 2 weeks and today has been horrific. Heartburn pain all day and really sore even at the back of my mouth. Has anyone else had this. I take Omeprazole every morning and this has made no difference.
Millielottie
in
ITP Support Association
3 years ago
ITP
Hi I diagnosed with itp last July, platets count was 1had ivigs and platets infusion been up and down since then steroids keep my count up with
revolade
. Just would like my life back to normal.
Hi I diagnosed with itp last July, platets count was 1had ivigs and platets infusion been up and down since then steroids keep my count up with
revolade
. Just would like my life back to normal.
Fishing55
in
ITP Support Association
4 years ago
Corona- now home from hospital!
My
Revolade
medicine (trombopoetin) was halted, still my platelets escalated to 419 (should be 50-100 on
Revolade
) I took daily shots of Fragmin to prevent clotting of blood. Blood work every morning at 04.00 to check platelets.....
My
Revolade
medicine (trombopoetin) was halted, still my platelets escalated to 419 (should be 50-100 on
Revolade
) I took daily shots of Fragmin to prevent clotting of blood. Blood work every morning at 04.00 to check platelets.....
Accordion
in
CLL Support
4 years ago
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