I am asking, because this is usually the most prevalent and looming threat that doctors like to point out. Internal, or more specifically cranial bleeding can be deadly but has anyone actually experienced it?
I have read one case of stomach bleeding (not deadly) and two cases of brain bleeding (deadly, but both infants) and outside of this, it seems hard to find (which is good, don't get me wrong).
On one hand, I understand why doctors bring it out; for one they need to double-check themselves and make sure you do know about the dangers.
On the other, my lowest has been 1, I've been hospitalized thrice and aside from being in a safe, controlled environment, there's really no benefit as all current medications can be administered without hospitalization.
Lastly, I do understand that ITP and symptoms are highly individual. Some people get symptoms as soon as their platelets drop below 50. I've been fortunate that even when I reached my lowest (1) the worst I had were bleeding sensitivity (nose, bruises but no actual bleeding), one case of bleeding (a small bloodstain I found in the morning on my pillow, with a dried bruise in my ear) and general fatigue, with a very slight head ache sometimes.
So in conclusion, I understand why doctors stick to guidelines and why hospitalization (in my case with 19 and later 3 and 1.6) is done. However, aside from injuries I wanted to gauge how often these steps are actually justified (including emergencies, if any were had) and then the question of the hospital stay itself which I usually find stressful and mentally demanding (the return home afterwards is very rewarding though).
I know this is a somewhat sensitive topic, but I'd really be curios to see what experience others had and how they feel about it. I know some people decided to completely forego this life style and stop going to doctors altogether and I am somewhat partial to choosing that path myself... Thank you for participating