SUFFERING WITH CHRONIC ITP SINCE 1 YEAR PRESENT IM IN HOSPITAL..TAKING STEROIDS..PL CALL BACK ME 9700019545

Dear Sir

My Mother Present Suffering With Chronic ITP ...Still She Is Under Going With The Treatment with steroids...with the oresence of doctors..PREVIOUSLY(Five months Before) my mother was undergone treatment with ITP. There Doctors Stopped This Bleeding Disorder Using Steroids..

but now my mother was suffering with heavy bleeding problem.AND 4000 ONLY LOW Platelets COUNT..and we are giving Platelets of single donor almost 5 units..and also had 6 random donor Platelets ..but there is heavy bleeding problem. and almost Doctors are giving steroids in the form of injection and tablets form still the problem was not cured….sir doctors present suggesting some immuno globin INJECTIONS sir pl reply me back as early as possible…9700019545 9603821742 8331831742

10 Replies

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  • Hi ijuju plz tell me which city you lived? Ivig is too costly but just 15 days or 1 month count high then low.it is emergency conditions not long time. Plez my email I'd is p.jana221988@gmail.com contract me. So many people living very low count not wooryed but you do not stay long time steroids, this med your mom takes just six or 1 years if it work but not work you out this med. This med very harmful for bones. You take other med or try homeopathy. My sis count last 10 month 5 to 14 but she lived normal life.last month her count raised 35. You talk your doc. So manymany doc not know what is itp, many doc know itp just read book not practical experience. YouYou choice a good hemotology doc.

  • OK SIR...Thank You..I will intimate regarding this to doctors...

  • In present case , iv ig option is the best one . Pls go ahead as per suggestion of docs right now . Once that critical situation is handled only then think about homeopathy as its all about hit and trial in homeopathy .

  • sir after this iv ig (5 days course) shall we go for removal of spleen(splenectomy)...

  • Want to know if you ever get any signs that ur numbers are low.if and red spots are soars in the mouth?

  • Do not go in for spleenectomy for now. You have other options lie eltrombopag, rhituximab, N plate etc. Before you remove the spleen. Also do not worry too much about low counts. I am with a count of less than 10 for several months and am leading a near normal life

  • Hello, I am not sure which country you are in but the following link gives contact details of the many ITP Patient support groups around the World. Hopefully one of these will be in the country you are in ...http://www.globalitp.org/index.php/member-organizations

    Also here is a full list of all the current ITP treatments...http://www.itpsupport.org.uk/treatmentsummary.htm

  • thanks a lot sir...these links built a hill of confidence regarding this...

  • ebmt.org/Contents/Resources...

    This is a very useful resource . It's written by ITP specialist nurses for nurses who know nothing about ITP. It isn't too technical

  • thank you sir....

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