Hi, I was diagnosed over a year ago when my count was at 5. I responded slightly to Prednisolone (got to about 60) but as soon as I came off it, fell back down to the high teens. I've been off all medication now for 9 months and fluctuate between 19 - 40 max.
My doctors want to do a splenectomy but I'm hesitant as I know it's not always the spleen causing the problem. After doing some research I found out about the Indium Scan and my doctors agreed to referring me for this.
I got an appointment through really quickly and have to go mid August.
I was wondering if anyone on here have had this done and how they got on with it? I'm ok with the scanning part but I have a major issue with needles (not ideal with this contrition I know!!) and am somewhat nervous!! Any help / advise would be much appreciated.