I was diagnosed (in Sweden) after the usual doctors visit, I had bruising, mouth blood blisters, the red dots all over my body, and a 16 hour nose bleed that really told me something wasn't quite right!
I was rushed into hospital with a count of 3, they tested it about 4 times in 24 hours.
After 4 days on steroids (100mg) my count was between 7 and 9 I lost the red dots and mouth blisters and went home.
However my count did not improve so they started to reduce the steroids and tried an IVIG, this worked great for a few weeks my count peaked at 122 and gradually dropped off. During this time I had a bone marrow biopsy, which was all clear. I have tried Rituximab once a week for 4 weeks but it did not work. I had to have a second IVIG to get my count up as it dropped down under 7.
My doctors started pushing for a splenectomy but I told them I wasn't interested at this stage, however I would like to try Revolade. They agreed to this and I am now on day 5. My count this morning was 30 which is more than double last weeks count. I am also changing my diet after reading a lot about that, hopefully that may help to fix the immune system in the long term.