I am new to this group. The following is something that lately I find is constantly on my mind and would welcome some comments on.
Over the last 9 years I have had many major open stomach, not keyhole, lengthy operations. eg cut open from rib to pubic area
During the next few days after these operations, on 3 separate occasions I have had an episode of post-operative delirium/psychosis. I have no history of such a thing or does anyone in my family. I have since spoken to many other patients, while in hospital and have been surprised at the amount who have also had similar episodes.
These episodes of post-operative delirium/psychosis are not of just being a little confused but of such things as in complete terror, hallucinating and paranoia, trying to escape from the hospital.
One person spoke of crawling across the floor, due to the severity of the surgery they were unable to walk. They were pulling out their tubes and monitors and throwing anything within their reach, including their stoma bag, at the hospital staff. They said they truly believed everyone to be an alien and were terrified that they were going to be taken away.
I myself on one occasion truly believed that the staff were trying to harm me and the only chance I had of being safe was to get away from the hospital. I had to be restrained from getting out of bed and to stop me pulling out the tubes and monitors. I believed all including my family to be part of it. The only person I trusted was a friend who lived 60 miles away. The hospital had to ring them and ask them to come to the hospital!
These episodes have not happened after every operation and seem to materialise after ones operation.
I can’t recall ever once being advised before an operation of the possibility of one suffering from such a episode!
Has anyone else had an episode of such a thing or been advised that this is a possibility. Could it be linked to the patient controlled pain control that one is given after a major operation, the one that you push a button when one is in pain?
It is such that I am at the moment refusing to have any more surgery. This is not because I’m frightened of the surgery but the thought of another such episode is truly terrifying?