First I would like to thank the community and everyone that posts about their experience. This has made understanding the processes and what my little sister is going through so much easier.
My sister is 27 and has been in the ICU since September. We were approached on the second week to take part in a probiotic research that they said could help her fight the infection. We agreed as anyone who has been in this situation knows you would do anything to save your loved one. Unfortunately this has come with its own sets of problems. We are no longer informed on what medications or procedures will be done. We just come visit her and she has a new band aid or a new operation. She was responsive and coming off her meds yesterday and today she has muscle spasms with foam Ike spit coming out of her mouth. Last week she was started on therapy then they stopped without telling us why. She was doing the tongue mouvements and opening her mouth and everything else the therapist asked. Today they are claiming the research doctor ( she was transferred to a hospital closer to home) said she is unresponsive. She responds to my sister and mother the most. She smiles, laugh, moves her limbs and is trying her best. The infection is gone, the pneumonia is gone, they said they have the delirium under control and she can breath on her own but they won’t remove the tracheotomy tube. We had both a CAT scan as well as an MRI and they both show no damage to the brain. I understand that she was under heavy meds for a month but now we feel like they just won’t give her the help she needs to rehabilitate and are trying to dismiss her as just being “sick”. Can someone tell me or send me a link to rehabilitation syndromes? What should we expect in terms of her slowly gaining her cognitive functions and memories back? How long did it take you guys? I know everyone is different I think I just need some hope because we all just feel helpless.