Hi guys, I am new to this app so would appreciate any advice.
My partner came into hospital in October very fit with pain in his collarbone and chest. He has Polymyositis which is a rare auto immune disorder so has been on steroids to control this. They gave him antibiotics & everything worsened. A week later he was in Icu as he was struggling to breathe.
He was put into an Induced coma & worsened quickly. Proned three times on high oxygen.
Sepsis was mentioned as well as the infection they felt he had in his lungs. We were told we were likely to lose him as he was a mystery to them. This was for three weeks. They treated what they said was a fungal infection and took him off antibiotics completely for 5 days. He then got very poorly.
They suggested he may have acute luekemia but he would be too poorly to treat. Seven times they said he might die. They gave him 24hours on Tuesday but gave him a new antibiotic for the blood infection they found and he has been responding, mouthing well from his tracostomy, understanding us and initiating his own breaths with low sedation but they still say after two bone marrow tests they feel he may have leukemia and he will die after this treatment of antibiotic.
We had a small glimmer of hope back and I just don’t know what to think or feel.
I have been sleeping at the hospital and it’s so upsetting.
Please has anyone any advice?