I have been suffering with this over 16 years. I have lost all my hair and I am taking Hydroxychloroquine....
Thank you for letting me join this group Iam 36 year old female I was diagnosed with Mtcd in Nov 2016 after a long battle with fatigue , join...
Hi, I’ve been on the above ( however badly I spelled it! ) for coming up 4 years I think at 400mg a day....
Success with Low Dose Naltrexone, Hydroxychloroquine, Tai Chi Chuan, Chronic Pain Self Management Programs
I thought I would give you an update on managing my Fibro & arthritis pain. I must say this is an excellent drug which has muzzled the majori...
Pain in right temple
Had a stinker of a day yesterday. Saw GP 8.20am as had intense pain in right temple for 4 days....
wrong type of snow
I decided to add what my GP had said to me last week, when I was with the boss lady, I said the Rheumy nurse talked about biological , and my...
First Cycle of Rituximab
Please bear with me as this is a long post! Finally got my 1st infusion on the 4th December after 2 previous dates being cancelled because of...
My world tipped upside down
Hi i was diagnosed with rheumatoid arthritis 4 years ago, and at first was in lots of pain and didnt have a clue what was happening to me as ...
My knees are driving me crazy
I just don't know what to do about my knees. I have been diagnosed with various types of arthritis, although blood tests do not confirm anyth...
"Super Juice Me!" Documentary by Jason Vale
healthunlocked.com/ra-warri... 1️⃣6️⃣ [ i]Gentle Chair Yoga for RA, X-Ray Yoga for Wonderment[/i ]:...
In praise of Hydroxychloroquine
I'm also acutely aware that the RA is still there, I can feel its shadow every day even though it does not ( currently ) have the strength to...
Diagnosing Graves disease
Anyway, it recently came up in my blood results that I had anti-nuclear antibodies ( or ANA ). Over the last 10 years I have been going up an...
Rheumatologist appointment - finally a diagnosis...
I've had several rheumatology appointments that didn't go the way I'd expected but not usually like this. I was really unhappy with my rheuma...
Hydroxychloroquine (Zentiva) supply problem.
Hi My chemist has rung me sat that they can't supply Zentiva Hydroxychloroquine and distributors have non. I have enough to last me 10 days....
Dizziness and right sided numbness, no clear cause.
Hi all, I recently spent a week in hospital. I was rushed in with a suspected stroke, right-sided weakness and lack of control, and extreme d...
A few words of advice/encouragement please. Possible Lupus/MCTD/vasculitis.
Hello everyone. I would appreciate some input regarding my questionable ( still between rheumatologist/dermatologist ) diagnosis of Lupus/ MC...
Hi, My name is Julie. I live in Pembrokeshire, West Wales....
Diagnosed Yesterday With SLE
My symptom list is exhaustive, & most of it tied in with Vasculitis, but what confuses me the most is I was tested for lupus to begin with. S...
Mixed Connective Tissue Disease?
The bad news is due to my symptoms the rheumatologist is not convinced it is only Lupus and wants to keep an open mind, he thinks there is pe...
Chest pain 😡
Im 22 and non smoker with SLE currently on 20mg prednisone daily and hydroxychloroquine and awaiting another rituximab infusion...
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