Today I went to the ENT specialist who has said he is almost certain I have sleep apnoea. I shall spend tonight wired up to machines to confirm then it's off to Oxford for a CPap machine. This has left me in a bit of a quandary because this doc says the symptoms that have been put down to APS could be caused by sleep apnoea. I'm not thrilled about having to sleep with a machine attached to my face every night but I'm more worried that this will mean my GP wont do my referral to immunology at Frimley Park and my APS will continue to be untreated (except for aspirin) and unmonitored and I no longer feel safe.
It will be nice if this machine eases the fatigue and joint pain but I still feel I should be under an immunologist. I was so certain I knew where things were going but now I'm confused and worried.