Our 1st Staffordshre meeting! 28/04/12. - Hughes Syndrome A...

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Our 1st Staffordshre meeting! 28/04/12.

Suzypawz profile image
10 Replies

We had our 1st Staffordshire meeting! :)

We met at The Stanhope Arms as organized, unfortunetly quite a few people had texed or emailed me to say they can't make this one but could I let them know when the next one is, so that I shall do :) as I would love to see more faces next time :)

Even tho' there was only four of us (apart from my brother & his wife & one ladies hubby, her friend plus her lovely baby boy :) that joined us for a bit) we discused a lot, gave each other advice & information & it was really nice to chat to each other, mainly about Hughes & our stories, plus we had a good old 'chin wag' too! :) so I thought it went really well considering the number! :)

Plus food was nice! dessert was fab' (& free!) & the coffee was Costa....so what can I say!:)

Thank you ladies for coming to the meeting :) looking forward to the next one already!! it was lovely to meet you all there........see I'm not as scary as you thought was .... was I Julie??!!! :) :)

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Suzypawz
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10 Replies
jetjetjet profile image
jetjetjet

glad your meeting went well, are you scaring people again suzy. they know you are a witch rite ?? so Sheena far left , you 3rd from left ,but i cant see the chin wag ???? but then again i wouldnt know one if i saw one i guess ??the other two beautiful ladies , i dont recognise. but that could be my top notch memory.hope all is well with you all. ---------------------------- uncle benny

Suzypawz profile image
Suzypawz in reply tojetjetjet

Yes thanks Jet, it went well, lol.... chin wag means chatting!

The lady on the left is Emma & the other is Julie, both great people & so glad to have met them :)

Take care uncle Benny :)

paddyandlin profile image
paddyandlin

well done se you did great

paddy

Suzypawz profile image
Suzypawz in reply topaddyandlin

Cheers Paddy :)

pumpkincake profile image
pumpkincake

So glad you all met and could talk and visit. I wish we had that here. Once things calm down maybe I should try to start a group. Hmmm....first I need to find people..lol.

Suzypawz profile image
Suzypawz in reply topumpkincake

It is nice to meet up with others & chat....even about nothing to do with Hughes!

We all always seem to have sooo much in common! it makes you not feel so alone.

Hope you are feelin better today x

jessielou profile image
jessielou

Hi suzi

It was so great to get together and chat, lovely to meet more like us who understand, we had a good laugh fillin in the gaps in speech etc or just giggling when we made mistakes. :-)

Costa coffe n good desserts yum!!! :-) :-)

Looking forward to 16 may in London then further staffordshire meet ups.

We really not that scary.

Nice to meet Julie n welcome a lady with nearly diagnosed fibro and lots of Aps symptoms.

Had a great night thanks suzi. :-)

Take care gentle hugs love sheena xxxxx :-) :-) :-)

Suzypawz profile image
Suzypawz in reply tojessielou

Lovely to meet up with you again...hope you are not so tired today! we wore ourselves out chatting so much! :)

Cant wait for London too, it'll be nice to meet others :)

Yes I shall keep you informed with Emma when I hear more.

Hugs, Sue xx

whitjd profile image
whitjd

No you weren't scary at all and thanks for organising the meeting. I had such a good time that I forgot to take my warfarin and am suffering now. It's the first time I've been off sick from work for sometime but INR has crashed and aching all over. Well I'll take it easy for the next couple of days and see how things go.

Sorry I can't be there on the 16th but have a good time.

Suzypawz profile image
Suzypawz in reply towhitjd

I am sorry to hear you forgot to take your tabs :( hope you feel ok soon, not nice.

Shame you wont be there on the 16th but you'll have to come up to meet us again! :)

I'l keep you informed hun, take care of yourself, speak to you again soon, fel free to call anytime, you have my no. xx

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