In hospital

[soul22]

Hi I was admitted second time round for elective cancer surgery a week two days ago.My clotting re platelet count just keeps going higher they already upped my blood thinning injections.

Had some clots in blood drain, surgeon tested that

I'm not officially diagnosed with anti phospholipid syndrome.

I'm taken off hydroxchlorquine whilst unable to eat.

Had ask it be added back as able eat soon

Should I be concerned find they don't act fast on things on IV antibiotics bad wound infection internally.

They had to remove my spleen, surrounding fatty layer tummy and extra areas of cancer sent to histology.

I had meningitis September in isolation then for two weeks.

Took ages headaches reduce

Just update not on regular blood thinners but apparently injections for 28 days post surgery.

Ovarian endometrial cancer re occurrence

[lupus-support1 Administrator]

I am very sorry to read your comment and wish you a speedy and a successful recovery.

With good wishes,

Ros

[soul22 in reply to lupus-support1]

Thankyou so much

[KellyInTexas Administrator]

so sorry to hear of these serious health problems you are dealing with. A hematologist that deals in clotting and blood disorders of all kinds needs to be kept in the loop at all points in time.

[soul22]

Hi my senior Dr came yesterday they were forcing me home ignoring signs infection

She stated u absolutely are not going home your pain is infection I can see where infection is.

She's also referring to haematology regard high clot blood results

[KellyInTexas Administrator in reply to soul22]

I’m very sorry to hear that but I’m glad for affirmation and a plan with a proactive Dr by your side.

Reminder- with APS D-Dimers will be normal when clotting because fibroginin does not work in the normal way. ( I recently sat Professor Hannah Cohen face to face and she reminded me of this.)

[soul22 in reply to KellyInTexas]

Not case not they back track on decisions I don't trust them

[KellyInTexas Administrator in reply to soul22]

I’m sorry I misunderstood the situation. I’ll re read all of this.

[soul22 in reply to KellyInTexas]

It's ok drs confused journey to me

[ste1000]

It's a though journey we rooting for you, don't give up

[soul22 in reply to ste1000]

Thank you

[soul22 in reply to ste1000]

I'm not giving up not said so thanks