Hiya all, I spent the last week feeling nauseous and steadily worsened to not being able to eat without gagging. My Tuesday venous showed a rise in inr to 5.3. (range 3.5 to 4.5) so nurse and I decided on a reduction of warfarin my 1mg to 4.5mg. My nausea continued and last Saturday I was finally sick. It was black!! Then when I put toilet paper in that immediately went red. Blood!! I did a finger prick, knowing my venous would be nearly a point lower and prick read 8. The breathlessness that followed was frightening I could literally only take 3 steps and no more. My husband went back to bed so I could use his electric wheelchair to get about. Of course I did nothing about it and just rested. By Monday I was feeling sick again and so rang the dr for anti sickness tablets. When I told him what had gone on and showed him the gruesome picture I took he turned round and rang the hospital to admit me.
And there the fun started. I’d only taken 1mg warfarin for 2 days and when they took my blood it was down to 5.7. Super I thought, just a couple of days and it’ll be down again. But the doctors despite my pleading not to stop warfarin not only ignored me and totally stopped warfarin and clopidogrel, they stopped everything. All my heart tablets, statins, water tablet, hydroxychlorquine, everything!! They listened when I said please no vit k. But an hour later put it through my drip. I had camera into stomach to check and he took a sample out just to be safe. It was a massive bleed and when I was vomiting it out some went into my lung as well. So yesterday they did a blood test and what do you know?? Yup inr 1.2. I burst into tears and said I’d told them that’s what would happen. They said I was dangerously low and cause a stroke or heart attack. Surprise surprise. 🤦♀️ So last night I was given 5mg of warfarin and 2 injections in 12 hours and today all my tablets we restarted and so my inr today is……1.1. So I can’t go home until they are convinced it is raising up continuously. I’ve told them I can inject myself but they won’t let me home. It’s been so stressful trying to organise carers for hubby and doggy. I am so near to discharging myself. At least the care package is sorted for night now and day carers are staying a bit longer at their calls. So I’m on my hospital bed relaxing and totally fuming. I had medical students around today and I will continue to offer to have them hoping in some small way to teach the up and coming doctors at least something about APS.
