Will b12 injection interfere with cho... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Will b12 injection interfere with chorea/movement disorder?

Charts profile image
6 Replies

I'm thinking of have the b12 injection as my fatigue levels are crippling me. I'm not deficient but on the lower end of the numbers. So I thought this may make a little difference. Only thing that's concern me is I have this seizure, movement disorder going on. I know movement disorders are triggered from overactivity of dopamine and then I have read b12 injection has some sort of dopamine affect. So I'm wondering if the b12 injection could make me worse

What do you think?

Written by
Charts profile image
Charts
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Star13 profile image
Star13

As far as I can see B12 can help Chorea according to this link:

pubmed.ncbi.nlm.nih.gov/248...

Perhaps you need to pinpoint what’s causing your fatigue though. You say your B12 is lowish, what about Folate? I recently found my B12 was not bad but my Folate was deficient and I had bad fatigue. I have been supplementing with a good BComplex and that has started to help.

Also have you had your Thyroid tested? You need a FT4 and FT3 to know what’s going on as if it’s low that can cause fatigue too.

As far as B12 and Dopamine you should ask your Doctor.

Charts profile image
Charts in reply to Star13

Yes I've had my thyroid tested and it was ok. I don't think I'm gonna chance it as I'm going away and worried it might work against me.

MaryF profile image
MaryFAdministrator

I have lost the minor twitches (irritating none the less), and extreme fatigue I had, by having B12 injections, alongside that I take in the morning a carefully dosed pill of B complex with Folate in it, as the B12 does require a decent folate supply to work properly, also my Thyroid is running better than it was and my levels of iron and D are good, it all helps with fatigue and for me, also, sleep. MaryF

Bloodredroses profile image
Bloodredroses

surely that’s one for the specialist s ?

Charts profile image
Charts in reply to Bloodredroses

Yeah I'll wait to speak to doc

Bloodredroses profile image
Bloodredroses

👍

You may also like...

Private movement disorder neurologist with understanding of aps?

I have some sort of movement Disorder and looking to go private as the waiting time with nhs is 1...

Looking for research on Chorea and APS Please

from the OHSU in Portland Oregon. The specialists have tossed Chorea onto the table with the APS...

Slurred speech, unusual movements

everyone, I never join chats, but have had APS since 1993 and have several recent issues and am...

Bleeding disorders alongside APS

prolonged bleeding so make the clotting caused by APS more difficult to treat. I think it might be...

To see a neurologist or aps dr at lupus centre?

I have had a problem with a movement disorder for a few yrs now. I seen a local neurologist who...