How can I get an appointment with Professor Beverly Hunt?

[Charts]

I can't seem to find any info how to get an appointment with Professor Beverly Hunt. Im looking to go private but if anyway through the NHS would be good as well. Its my neurological symptoms I'm trying to understand and my rheumatologist just looks at me like he got no clue. So even if someone can recommend a Dr who understands this side APS please let me know!

[HollyHeski Administrator]

Hi, I don't think Professor Hunt is taking any new patients and has never done private appointments Others on here can recommend other APS specialists NHS & private- are you wanting London area?

[Charts in reply to HollyHeski]

To be honest I will travel anywhere in the UK. Thanks for your reply!

[HollyHeski Administrator in reply to Charts]

Brill - recommendations will come soon x

[MaryF Administrator in reply to Charts]

If you wish to go privately, you could telephone The London Lupus Centre, at London Bridge Hospital and have a chat with the secretaries there who will inform you as to who is available. Prof Hunt does not do private, but perhaps your GP could refer you on the NHS, but not sure if she is taking new referrals currently. MaryF

[Oliversmum]

topdoctors.co.uk/doctor/kar...

[Charts in reply to Oliversmum]

I will look into this Dr. Thanks for the reply!

[Fra22-57]

professor D Cruz and his team are excellent at Guys hospital.I used to see him a few years ago

[Charts in reply to Fra22-57]

I have heard of this Dr. I think he works close with other aps doctors as well with knowledge of the neurological side of things

[Star13]

Prof Hannah Cohen UCLH 0207 908 2103 /07860 853954

Email: [e-mail]

[GillyA in reply to Star13]

I’m an NHS patient of Prof Cohen’s, she and her team have been great. The National Hospital for Neurology and Neurosurgery at Queen Square is also part of UCLH and the treatment I’ve had has been pretty well joined up (I have CVST and epilepsy and they now think the underlying problem is the APS).

[Charts in reply to GillyA]

I have seizures but it didn't show up aa epilepsy on the eeg. Also have these weird episodes of strange movements. But now aps has come about im wondering if it has something to do with aps as up til now I got no answers. What triggers your seizures?

[GillyA in reply to Charts]

I don’t have any trigger, the seizures come completely from nowhere and didn’t start until my early 30s. Fortunately they are well controlled by medication and don’t happen that often. Mine don’t show up on EEG either, they don’t for a good percentage of people with epilepsy.

[Charts in reply to GillyA]

I have read that they don't show up for people sometimes. I have something called pots syndrome which when I stand up my blood don't flow properly and when it's bad I tend to have seizures. They tried telling me it was psychological because no activity on the eeg. Since then found out I have pots, aps etc.

[Ozchick in reply to Charts]

I didn't get Epilepsy until about 3 or so years ago. Saw a Neuro and had that same blank stare after EEG was -ve. I was in hospital later on an unrelated issue and woke up to find a room full of doctors and nurses armed with O2 and my hubby having a panic attack-thinking I was dead!! Trouble is, I have no memory of this happening at all and my brain was scrambled for several months following. After having this seizure I saw a Neurologist (still seeing) and had another mild seizure about 3 months later and added to my long list of meds. In a way I lucked out because my Rheumy who I've seen for several years also works at a private practice with her and was able to tell her I'm not completely mad-just weird!!

[Charts in reply to Star13]

Thank you for that. I have never heard of that doctor

[Star13 in reply to Charts]

Prof Cohen is in my opinion the best Haematologist in the UK. She ran the RAPS trials until they were stopped. She is a very thorough and nice Doctor.

[Tucson]

I gave my GP her details and got him to write a referral. You don't always get to see her but one of her team who all refer back to her.

[Charts in reply to Tucson]

I could try that way. Thank you!

[Honeymonster]

Hi there,

I too am with Professor Hannah Cohen. I think she is very thorough and extremely knowledgeable. She will always get back to me if I have any questions - very reassuring.

I first saw her as a private patient and then she transferred me into her NHS clinic. I now have an appointment every 6 months.

I hope you are able to see her or a member of her team.

Good luck.x

[Charts in reply to Honeymonster]

Would you say she knows about neurological symptoms like seizures and chorea? As I've never had typical problems of aps like blood clots.

[Honeymonster in reply to Charts]

I totally lost my vision temporarily back in 2020 and she arranged for me to see her colleague in Queens Square. They were amazing and still call me. She also recommended another colleague for my Raynaud’s symptoms.

I hope this helps.x