I can't seem to find any info how to get an appointment with Professor Beverly Hunt. Im looking to go private but if anyway through the NHS would be good as well. Its my neurological symptoms I'm trying to understand and my rheumatologist just looks at me like he got no clue. So even if someone can recommend a Dr who understands this side APS please let me know!
How can I get an appointment with Pro... - Hughes Syndrome A...
How can I get an appointment with Professor Beverly Hunt?
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Hi, I don't think Professor Hunt is taking any new patients and has never done private appointments Others on here can recommend other APS specialists NHS & private- are you wanting London area?
To be honest I will travel anywhere in the UK. Thanks for your reply!
If you wish to go privately, you could telephone The London Lupus Centre, at London Bridge Hospital and have a chat with the secretaries there who will inform you as to who is available. Prof Hunt does not do private, but perhaps your GP could refer you on the NHS, but not sure if she is taking new referrals currently. MaryF
professor D Cruz and his team are excellent at Guys hospital.I used to see him a few years ago
Prof Hannah Cohen UCLH 0207 908 2103 /07860 853954
Email: Leighann.Dennis@hcahealthcare.co.uk
I’m an NHS patient of Prof Cohen’s, she and her team have been great. The National Hospital for Neurology and Neurosurgery at Queen Square is also part of UCLH and the treatment I’ve had has been pretty well joined up (I have CVST and epilepsy and they now think the underlying problem is the APS).
I have seizures but it didn't show up aa epilepsy on the eeg. Also have these weird episodes of strange movements. But now aps has come about im wondering if it has something to do with aps as up til now I got no answers. What triggers your seizures?
I don’t have any trigger, the seizures come completely from nowhere and didn’t start until my early 30s. Fortunately they are well controlled by medication and don’t happen that often. Mine don’t show up on EEG either, they don’t for a good percentage of people with epilepsy.
I have read that they don't show up for people sometimes. I have something called pots syndrome which when I stand up my blood don't flow properly and when it's bad I tend to have seizures. They tried telling me it was psychological because no activity on the eeg. Since then found out I have pots, aps etc.
I didn't get Epilepsy until about 3 or so years ago. Saw a Neuro and had that same blank stare after EEG was -ve. I was in hospital later on an unrelated issue and woke up to find a room full of doctors and nurses armed with O2 and my hubby having a panic attack-thinking I was dead!! Trouble is, I have no memory of this happening at all and my brain was scrambled for several months following. After having this seizure I saw a Neurologist (still seeing) and had another mild seizure about 3 months later and added to my long list of meds. In a way I lucked out because my Rheumy who I've seen for several years also works at a private practice with her and was able to tell her I'm not completely mad-just weird!!
I gave my GP her details and got him to write a referral. You don't always get to see her but one of her team who all refer back to her.
Hi there,
I too am with Professor Hannah Cohen. I think she is very thorough and extremely knowledgeable. She will always get back to me if I have any questions - very reassuring.
I first saw her as a private patient and then she transferred me into her NHS clinic. I now have an appointment every 6 months.
I hope you are able to see her or a member of her team.
Good luck.x
Would you say she knows about neurological symptoms like seizures and chorea? As I've never had typical problems of aps like blood clots.