Hello all, hope everyone on the forum is finding answers and support. It has been a long while since I posted, felt a check in might be nice.
A looming question and personal observation related to APS diagnosis or living with APS...diet, hydration, exercise & stress management have truly been a contingent partner in my life along with proper medications. 2020 was a kicker here for us, our oldest son passed away suddenly. Living with such a traumatic loss is difficult for anyone let alone someone with medical barriers. Loss of this magnitude is overwhelming to say the least. Pain like I've never known inside. Goodness the never ending ache of him not here with us on earth, grieving slaps the heart around. Needless to say, my personal health took an intense tumble backwards. Currently, slowly, I am swinging back into physical stability. Which leads me to my post...for those of you that share similarities in physical diagnosis, remember to recognize the fuel that stress pours on top of your physical health and please seek help both with physician and counseling in order maintain what strength that you can. The shock in the loss of my son, caused my nervous system to collapse. I could hardly walk as my entire body shook uncontrollably, the pain was through the roof, I barely functioned for most of the year. I could not find my way out of the mourning or the physical backlash that my body was throwing around. I held onto my doctors hand and my families so tightly along with my faith. Listening and leaning until some similance of strength arrived.
As of today, I am back to walking a mile, eating the right foods & hydrating every hour. Sleep is difficult and this has been a hard slump to come out of. Proper sleep is tremendously important for our immunity. With COVID we were not able to have a funeral for our son, which left such a massive canyon in our families hearts. So my husband and I purchased a huge stone that allows water to pool on the top much like a water feature and we are having his name and dedication engraved and it is now his headstone in the middle of our garden which is now a park memorial in his memory. Our family and his friends are able to come over and sit on the park bench and visit his headstone and watch the birds bath on top of his rock. Finding peace in the middle of the storms is so vital... With physical barriers, we must recognize the importance of the simple methods related to nutrition, exercise and professional supports, we must do the "work" so to speak.
So to all of you that have your own barriers in life along with swimming in the chronic pain and physical barriers....breathe....take care of your vessel and mind...count your blessings & do as your body needs you to do because so many love you and need you present. My son would want me to fight like a champion, I hear him cheering me on to get back out there and walk my daily mile or two or three and to turn away from stress foods and sip contently on healthy anti inflammatory foods and hydrate properly as our blood requires it. We must be responsible with our barriers. Our barriers must not steer our focus because life is precious. I hope this post brings some loving push to anyone that needs it.