Aps and a suppressed thyroid. - Hughes Syndrome A...

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Aps and a suppressed thyroid.

Jillymo profile image
4 Replies

Is it harmful to have a suppressed TSH ? I am hypothyroid and also have hypoparathyroidism. My endocrinologist keeps me over medicated but I am concerned about my constant suppressed PTH. No matter what my blood results are my consultant never alters my medication. I am chronically overheating, leg cramps and feeling exceptionally weak.

150mcg Levothyroxine

20mcg Liothyronine

Test reslts -

Free T4 level, plasma 15.7 pmol/L

Thyroidstimulating hormone, plasma < 0.01 ( munit/L LOW )

Free T3 level, plasma 4.9 pmoI/L

25 vitamin D comment LABR2168

Vitamin D level, blood 0.78 g/L

Vitamin B12 level, serum 363 ng / litre

Folate level, serum 6.3 microgram Per L

Red blood cell count, blood 5.09 x10 / L ( High )

Mean cell heamoglobin level, blood 26.9 pg ( Low )

Write up-

Her red cell count is slightly high, and the MCHC slightly low.

The TSH is suppressed, but this has been the case in the past.

I will see her again in six months

Is there anyone on here who can enlighten me with these results ? Please

P.s I have antiphospholipid syndrome and on anti-platelets.

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Jillymo
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4 Replies
MaryF profile image
MaryFAdministrator

HI there your best bet with this is to load up your results on Thyroid UK, on here, including the full reference ranges, and you will get some very detailed replies. Well done on getting so many tests done. MaryF

Jillymo profile image
Jillymo in reply to MaryF

I did exactly that but even more confused because I am being told what a good endocrinologist I have and its ok to be over medicated and and to have a suppressed TSH - wish I could say I felt alright but I dont.

I took a list of all the tests I wished to have carried out and insisted on a print out of the results. I am also concerned about my cell count.

MaryF profile image
MaryFAdministrator in reply to Jillymo

It is not unusual to have a suppressed TSH on T3 of NDT, which contains T3, doctors just have to learn to recognise that if people are not on standard T4 therapy only. thyroiduk.org.uk/tuk/thyroi... MaryF

Jillymo profile image
Jillymo

Thanks Lynn,

I have been feeling really out of sorts and as weak as a kitten - I also wondered if maybe pernicious anemia. As for the thyroid I feel it is in need of a little fine tuning - as Prof Hughes told me. Bless him.

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