My wonderful Christmas news. - Hughes Syndrome A...

Hughes Syndrome APS Forum

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My wonderful Christmas news.

Ozchick profile image
12 Replies

I saw the cardiologist today to get the results of my TOE. As I'm recovering from my surgery, apparently my heart is also and won't need heart surgery in the near future but check ups every 6 months with an echo. (However she threw in the proviso that if my shortness of breath gets suddenly worse go straight to ED) I have the go ahead to start walking and increasing gradually distance. To throw a spanner in the works she did say that 'rarely' APS can cause Mitral valve disease. I think it's time for a 'common' disease!!

Mrs Blackbird gave me the 5 babies for Christmas. (makes watering the garden a bit tricky as I don't want to disturb her too much.) The nest is about 3m from my back door and she's happy to do her thing with us around. These were born 3 days ago.

Have a happy and healthy Christmas to all of you and stay well.

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Ozchick profile image
Ozchick
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MaryF profile image
MaryFAdministrator

Have a great Christmas x

Lure2 profile image
Lure2

Hi Ozchik,

Fantastic good picture of the baby-birds! Thank you for showing them to us.

Good news about your heart!

Exactly the same they say to me that if I get breathless I shall go direct to hospital. I just try to keep my INR in the right spot. Hope that helps.

Merry Christmas

Kerstin

GinaD profile image
GinaD

Merry Christmas! Your positive post has given me an additional servings of holiday cheer. Thanks for sharing.

Wittycjt profile image
Wittycjt

What is TOE?

Ozchick profile image
Ozchick

May be called TEE in States (different spelling) stands for trans oesophageal echo.

Wittycjt profile image
Wittycjt

Ah yes, I am familiar I had one of these before my heart surgery, but unlike you they found a growth. Good luck to you , I am glad it showed benign for you, what surgery are you recovering from? Cindy in NJ

Ozchick profile image
Ozchick in reply toWittycjt

I've just got a new phone that must be smarter than me-I'm getting notifications about stuff over 6 months old😊 Better stick to my computer!!! I'm having trouble finding recent stuff. I will blame it on my Hughes!

Wittycjt profile image
Wittycjt in reply toOzchick

What surgery are you recouping from?

Ozchick profile image
Ozchick in reply toWittycjt

I have recuperated! - the surgery was last November for bowel obstruction. I have felt really well these last few months and except for feeling puffed out on hills and stairs I could be you poster girl for old lady in peak health!😎. I'm sitting in the sunshine reading a book ATM -I don't know what's causing our fine spell but I won't complain about 25deg sunny days!

Wittycjt profile image
Wittycjt in reply toOzchick

Glad your feeling better, enjoy the weather. What time is it there. It is 11:30pm here in the good ole US of A

Ozchick profile image
Ozchick in reply toWittycjt

1.33pm -you're up late!

Wittycjt profile image
Wittycjt in reply toOzchick

Was at a social outing and just got home a short while ago. It was fun! Need more of that🎉

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