Hi, My name is Lene'. My Sister-in-law has been diagnosed with "APS" and has been hospitalized since April 17th. She has other complications as well but the APS seems to be a spot-on diagnosis because of her symptoms. She also suffers from PKD (polysistic kidney disease) and must undergo dialysis atleast 3 (sometimes 5) times weekly to survive. Not sure which came first...the PKD or APS/Hughes. She does not have access to the internet. I found this site while trying to learn more about her condition and have been printing off many of the blogs that all of you have been posting. Your postings have given her great comfort and I want to thank you for that. There are a few questions I want to ask all of you:
Do any of you have eye problems?
Any of you have issues with not being able to walk?
Any open sores that just will not heal?
Looking forward to getting your answers and sharing them with "Sissy"
Keep up the good fight,