Red lumps on leg.

[Sev132]

Hi all. For the second time this year, I started to get these lumps on my leg. They start off only slightly painful, then progress to one huge lumps, very red and extremely sore. Initially doctors thought it was another clot but it wasn't. I've been told it is something called erythema nodosum but they cannot find the cause of it. I have APS and Sarcoidosis but neither seem to be the trigger. All my bloods and scans and whatnot have come back clear. Treatment is high dose Prednisone (25mgs/day) and complete rest and elevation. Haematologist is also in the loop and looking into it. Was wondering if anyone here has ever had this happen to them??

[MaryF Administrator]

Are they at all like hives in nature, as sometimes these can develop if people have Hashimoto's, which is not uncommon with us lot to have a autoimmune thyroid disorder alongside our other autoimmune problems. nhs.uk/conditions/Nettle-ra...

MaryF

[Sev132 in reply to MaryF]

No Mary nothing like hives. These are hard lumps which get bigger as the weeks go by. One of the most common causes is sarcoidosis but my test results show my sarcoidosis is inactive at the moment ... still digging...6 biopsies already this year! My leg is starting to look like a battle ground!

[MaryF Administrator in reply to Sev132]

You poor thing, I hope they get to the bottom of it, do let us know. MaryF

[Sev132 in reply to MaryF]

Thank you!!

[jetjetjet]

I have had two bouts with Petechiae and i had those little red bumps from neck to ankles--and when i got in the hot shower in the rain room I turned into{LOBSTER MAN } my facial features swelled to the point of bleeding Ears , lips , eye lids . and ankles swelled also. went to ER they said HIVES ya right -- it lasted a couple of days and then gone.But i don't remember them getting large like yours did - good luck with them !! Sev let me know what happens when it is all said and done Please it may be of help to me next time it happens to me again, Hopefully it won't but knowledge is great to have Casey & I

[Sev132 in reply to jetjetjet]

Ouch! Sounds very painful! This is 8 weeks on now...hopefully they get to the bottom of it. It is being treated, but if they don't find the cause it will just keep happening. So annoying when they don't have answers :S

[Sev132]

Thank you for that! I will definitely be asking the specialist when I see him again! The first time I had it, it lasted about 8 weeks. This time, I'm already up to week 9 and it seems to be slowly going away. I will let you know!

Quick question- did yours hurt? I did a quick google search and it said it isn't usually painful?

[itasara]

I had the same diagnosis when I was about 20 years old it was about 48 years ago! I had large red round circles down on maybe both legs on my tibia. It looked like bruising to me, but my mother didn't like it so I came home from college and I saw my home physician at the time and he diagnosed it as erythema nodosum ( no biopsy done, he just knew what it was) I don't remember getting any treatment and it went away. There was no Internet at the time but I looked it up probably in my Merck manual Which said it might be a precursor to rheumatoid arthritis which I never did get ( at least not yet) however I did eventually get some psoriasis on my heels and later multiple sclerosis which may or may not have been related to this precursor situation.I was also diagnosed last year or so with a rare condition called Pityriasis lechenoides which are chickenpox-like, round itchy red raised bumps small but of various sizes, mostly on my calves and sides of my legs. I was on antibiotics for this for about three months and then they went away temporarily for many months except for occasional small break out on my Ankles. My dermatologist told me then to come off the antibiotics because of Yeast infections. And the rash did not come back fully until a couple months ago and now it has spread over the lower part of my cats inside of my legs and I'll probably have to go back on antibiotics, but not sure I want to. I plan to make an appointment to see him. I have been treating it per doctor's recommendation with the same topical steroidal medications that I use on my heels to keep the psoriasis away. I added on my own some over-the-counter Cortizone cream and antibiotic cream. But the rash has returned in the last month or two and spread. I'll probably need to go back on antibiotics but I'm not crazy about the idea. Has anyone else heard of or have this Pityriasis lechenoides? Apparently it is very rare with no known cause although on the Internet when I looked it up one possible cause is hormone therapy which I have been on for quite A number of years. There is no cure for it!

[Lure2 in reply to itasara]

I wonder if you also have APS? You have a lot of other diagnoses.

Best wishes from Kerstin in Stockholm

[Lure2 in reply to Lure2]

My question is for Itasara.

Kerstin

[itasara in reply to Lure2]

What is APS? I have appt tomorrow with my dermatologist. I will let you know what he says if I can find my way back here again LOL.The biopsy did say I had Pityriasis lechenoides. Don't know that it can be anything else but who knows?

[Sev132 in reply to itasara]

APS is Antiphospholipid syndrome

[itasara]

So I saw my dermatologist Wednesday. He put me back on antibiotics for two months and then I see him again. He also changed the topical medication for now. It isn't APS or any other condition. It is basically this incurable skin condition I mentioned. I looked it up again and it said that sunlight is helpful which may be why it was kept at bay for all these months since I was on antibiotics before. On the other hand I hardly spend anytime in the sun anyway. Oh well.

[Dizzydonna04]

I started with painful legs then redness then bruises then pumps and yes they are painful and this is how I was diagnosed with sarcoidosis.seen rhuematologist and also have fibrosis so not good