Restless Leg Syndrome.: I know a few of... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Restless Leg Syndrome.

Suzypawz profile image
9 Replies

I know a few of you have mentioned before about restless legs?

Here was one post in the question section only back in Oct':

hughes-syndrome.healthunloc...

I know 40% of nights I have this except a lot of times it feels like my whole body! it feels like something is crawling under my skin & my mind is active too but am absolutly exhausted :(

I feel like a squirrel thats been either on a lot of coffee or red bull!!! :)

Restless leg link:

nhs.uk/conditions/Restless-...

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Suzypawz profile image
Suzypawz
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9 Replies
Missdaisy profile image
Missdaisy

Hi the nerves in my feet twitch constantly. I put it down to when I fell ice skating 3 years ago but to be honest it's got worse so will mention it again to consultant. Sometimes on waking the whole of my legs are trembling but on the inside as if all the nerves inside are crawling around. Also try taking a magnesium supplement before bed. Helps calm nerves and your mind. It works for me. Good luck.

Suzypawz profile image
Suzypawz

Hi yes I've heard that may help also eucalyptus rubs? anythings worth a try isn't it?? I also stopped going on comp' & drinking caffiene drinks late at night too............

Glad you've found a way to ease yours :) x

jetjetjet profile image
jetjetjet

Hi - Princess i have this also-- some nights better than others -- back from doc's inr on the way back up - skin problem on feet starting again -,at least dc's are seeing it at the start - couple of creams to use - stom heittng here now -- it's4:14 here now police are making people get off the roads -- i'll keep you guys informed if i can !!!! winds now at 60 miles an hour -- batten down the hatches and hold on it's going to be a ride . did you cast a good spell for us here in New Hampshire !!!! - skin pealing , hunched back, breeze me

Suzypawz profile image
Suzypawz

Hi bud, yes I did try a weather calming spell for you! :) think it might be hard one tho'!!

I hope you'll be ok in the storm keep us posted....

Yes I think the legs one is a common one for us Hughies :( good luck with inr behaving & hope there's improvemment on skin etc too, thinking of you over there in the States, keep safe bud :)

jessielou profile image
jessielou

Hi hon

Yep same here, always something disturbing the sleep, so the legs play too. :-)

Keep in touch Jet, I hope you all get through the storm ok. We midlands witches have tried :-) you take care hon!

Take care gentle hugs love Sheena xxxxx :-) :-) :-)

daftdog profile image
daftdog

I call it fuzzy legs and suffer mostly at night,also have violent jolts to the legs,which can wake me!!

SueLovett profile image
SueLovett

Yes I get this too,

sometimes my legs just get all jerky, mostly the right one.

I also get the creeping under the skin feeling described.

Keep safe Jet, hope youv'e got plenty of whisky in incase you get stranded!

xx

lovemycat profile image
lovemycat

Wow! I am new to this website and love it already! I have been diagnosed with restless leg syndrome when I was undergoing a sleep study. I didn't know I had it as nobody ever mentioned that I moved around alot during sleep and my bed never looked torn apart. But my leg cramps are getting worse at night and I take 400 mg of magnesium at bedtime - apparently to no avail. I wake up in agony with leg cramps about 4 out of 7 nights. Any suggestions? Sleepless in Arizona!

MaryF profile image
MaryFAdministrator

HI there, I take magnesium and it has made a real difference, always on a full stomach at night, also vit b complex amongst other things. Mary F x

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