High blood pressure???: My blood... - Hughes Syndrome A...

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High blood pressure???

Teanna profile image
6 Replies

My blood pressure has always been the same throughout my many health issues, then all of a sudden my blood pressure has been high. My GP asked if I was taking anything for it, (I thought she should know as she prescribes me my medication). Obviously I don't. I went again a month later and it's still high but she wants to see me again next week plus to check these lumps that has appeared on my hand/wrist and now the left side of my shin. My foot I can only stay in a forward position, if it's pushed inwards, the pain is herific, it won't go outwards, it's as though something is stopping it. These lumps I've been waiting for months, now I'm going to an in health chanter which I don't know why he could not have done this in the beginning.

I have written a list (my short term memory is terrible), so I can ask about other issues as I just can't take no more, then pain is unbearably.

I hope that she can give me some answers?

Have a lovely weekend

Teanna

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Teanna profile image
Teanna
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6 Replies
GinaD profile image
GinaD

I'm stumped. But pain will certainly raise blood pressure. And as for foot issue--if other issues are ruled out, try drinking coonut water or eating a banana in case you have electrolyte imbalance. ( though go easy on salt due to its impact on BP)

Lure2 profile image
Lure2

Hi Teanna (before Firefox I remember),

I have forgotten if you have got a Specialist of autoimmun illnesses these days?

If not you must fix one.

You should absolutely not go with your high bloodpressure as that can be one of the symptoms from HS/APS and can lead to other trouble with PEs and heart/lung-issues later on. Happened to me.

I bought myself a blood-pressure machine when my blood-pressure was erratic and very high in attacks.

I assume you are taking Warfarin or something else today.

Please tell us how it goes for you.

Kerstin

Teanna profile image
Teanna in reply to Lure2

Hi Kerstin,

I'm still waiting for scans on my lumps, luckily my GP pushed for an In health clinic which is for next week.

I'm in a lot of pain, and I've never ever had high blood pressure, I'm in a catch 22, no-one seems to know what's going on.

As I said about the Ostoperosis, I've never been tested, so I don't won't to take the medication which my GP prescribe, then yesterday (Friday 23rd), I received at letter from the hospital dating back from seeing them 10mths ago, with a list of a few health issues including Ostoperia, which is the beginning of Ostoporosis. My GP made an emergency appointment to see her on Wednesday, but she don't know what's going on.

I'm on Riveroxoban and been on it for almost a year, but I'm suffering more pain in my legs, so I don't know if there is an underlining problem.

I'm just a totally confused person who is in pain 23/7. I need help, so I will see what the scans say, and try and see Dr Cohen but it's been hard to get hold of her.

Thank you Kerstin for taking time and giving me advice.

Kind regards

Tina

MaryF profile image
MaryFAdministrator in reply to Teanna

Do let us know what the GP/specialist things about this. MaryF

Lure2 profile image
Lure2

I am worried that you have not a Specialist-Doctor in command!

I know that so many things go back to HS/APS. This thick blood we have make damage to a lot of different organs. Every cell we have.

Have they done a D-dimer so you can be certain it is not a clot somewhere? I am also afraid that the Rivaroxaban is not enough. Those of us with arterial clots, who need an INR over 3.0 (you probably) can not take that drug. We need Warfarin or LMW Heparin.

Could you ask for "a trial of LMW Heparin" and see if you feel better. !

Kerstin

Teanna profile image
Teanna

Hi,

At last after 6 months of waiting to see what the lumps on my hand are and the numbness of my to end fingers etc, I had a scan. It showed that my tendons had swollen so much that it was effecting my nerves plus she also saw a ganglion (I think that's how's it's spelt) and it's pressing on the carpal tunnel area, if you know what I mean. I can't have any NSAID's so to have cortisone injection at my GP's. I thought I had tendinitis, but my GP called it something else (but I was so confused, plus a bit of brain fog) I can't remember what it was.

But I'm still non the wiser, the report was sent to my GP saying that I needed to have a cortisone injection, but my GP refused to do it and said it's to be done at the hospital. And to have a scan to make sure where the needle will go. As for the numbness of the fingers etc, when the hospital called me and said that the nerve is trapped and until the swelling goes down then they will see exactly what's going on.

My my GP says otherwise, she has told be that it's something completely different and I (myself) have to get in touch with the physio, as I'm under them for something else, and tell them what is going on, and let them deal with it. Surely there not going to treat me with this, I'm sure I will have to be referred to the neorologist (as the doctor said whom did my scan). She also said I would have to be careful, don't use the hand just small exercises until then tendons have gone down, then to remove the ganglion.

I alsobwanted to ask my GP about my thyroid because of the last result being boarderline of 25, (and what did this mean etc), but she did not want to know.

All this consultation was done over the phone, she would not see me in person.

I know that my GP tells me that I'm a complexed case, but surely I need help not a slab of meat that's been pushed from pillow to post.

I hope this all makes sense, oh by the way, my 2 end fingers are now completely numb but hurt inside and they are stone cold, the rest of my hand is warm.

Where do I go from here ???

Teanna (a desperate person).

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