It has been 6 months now since surgery, the five incision took a very long time to heal. Ended up having shingles twice during the six months and staff in the incision. My body simply does not heal quickly on any level. However I feel significantly better since the removal of the blood cysts/mass's and the full hysterectomy.
My joints continue to seize up often, early morning and at night mostly or if I over do which I tend to do considering I love my work and have high energy dogs. Currently I have been logging all my food and hydration daily. I truly feel better without gluten and with ample hydration. I drink yerba matte which helps with circulation and gives me energy as well. The fatigue some day's are difficult yet I am learning to embrace slowing down when it is needed.
Lifestyle choices have changed since the PE and DVT and the last two major surgeries. I am 47 and in good overall health, so to slow down has been a two year battle for me yet I am learning if I eat exactly right and drink significant water and the right kind of teas, and slow down my body runs better and pain is simply better to manage.
I am scheduled for a new rheumatologist this next month as the joint pain and seizing of the joints are difficult no matter. I use a cane sometimes when my balance and joints are being naughty. I wear my compression socks and planter fascititis socks daily. I noticed on the forum that so many of us have joint pain and seizing along with the heel pain/fractures. My question for the day is, does APS progress into other diseases? It seems even though I am well managed and have a self testing machine which I use successfully and keep a consistent INR between 3.5 and 4 in order to feel my best at this level.
I was diagnosed with Lupus non specific yet really do not understand this entirely? The RA doctor said I am fine and do not have anything needed of medication for the significant joint pain and seizing yet my body says otherwise. The pain, swelling and imbolitiy of my legs, ankles, feet and overall joints is so painful. I take "body breaks" and elevate and rest to help it along yet the pain is not fun on any level.
It is frustrating when my body feels and performs differently then when the Rheumatologist says after blood tests say no lupus, just symptomatic lupus. What does that really mean and does it progress into other health barriers before doctors can detect? It just does not seem normal to me with me being overall healthy and consistent INR along with being on 7.5 ml of Warfarin daily with a great diet and happy lifestyle.
Thanks for any ideas or input. This forum has helped me so much by having support from those that understand and who drive the same ship as I.