A month ago my hemotologist talked to me about the risks of warfarin - I do not have an identifiable clotting episode. During the consultation I began to feel odd; my INR had been at 2 for weeks. He had said to consider coming off warfarin. He then said - "Is your face going numb on the right side?" I said yes and I was dribbling from the right side of my mouth which had apparently dropped. My speech became slurred and slow.
He took an INR and again just 2. I then went home - he told me to increase my warfarin for a week and see my GP next day.
I have felt awful ever since.
Then yesterday the INR test showed I had doubled to 4.3
Usually I feel great at 3.5 plus - the higher the better - but this is being discouraged and I totally understand their argument. They want me at 3 max. But this is the first time at over 4 that I have not felt fab. My speech is worse than it's been in a year. I am wondering if actually I am having one of my Hughes "funny turns" (which always look like a stroke) regardless of the warfarin and high INR.
Does this make sense?
ST T's say maybe I only have obstetric APS, despite having had 2 late miscarriages, positive LA and Anti beta 2 my hematologist says "I can't be confident that you don't have APS"????? My neurologist just says come back if you need to. Only my rheumatologist says yes its APS - he says to keep an INR of 3 these days (he did say 4plus but lowered it saying I need to find a theraputic low level as I have not had a clot).
I am seeing all these different consultants because St T's advised it in between visits to them.
I am confused and feeling ill.
Any thoughts would be welcome.