hello
My test results from St T's came back today.
I am now testing positive to the antibeta2glycoprotein and the lupus anticoagulant. Formerly it was "just" the antibeta 2.
I am B12 deficient and will be on B12 injections for life. I was told the deficiency is auto immune based.
I am weakly positive (ANA) for lupus and hydroxichloriquine is recommended.
There is a chance I may "only" be APS positive during pregnancy so I may be able to come off warfarin and use just aspirin - though my local consultant & GP would prefer me to be on warfarin.
In the mean time - today I have had to have a d-dimer test for a suspected clot/dvt??? If I have a positive result then tomorrow I will be admitted to hospital.
Hughes may be attacking my kidneys as I have had several tests done which indicate blood & protein in my urine.
I am just numb with all of this.
St T's had discharged me but today, following the results, I was offered an annual review and they recommend that in the meantime I am seen by a local haemotologist, neurologist and rheumotologist.
My GP just said she can not believe how much I am going through and said she is there for me - so I guess I am lucky.
But I still feel numb but thankful that I am finally after 20 years being looked after.
Lynn.x.