Not feeling very well today.

[xxkellywxx]

I guess today is just one of those days when I just feel really sick Dizzy, no concentration and just plain blergh! Took an aspirin and I feel a little better, Wish the Hematologists would hurry up and see me, it's been 4-6 months now. Today just feelz like a haze, everything is going in slow motion and To be honest I just want to lay down all day and sleep xxx Anyone else feels like this sometimes? xx

Also anyone else don't do mornings? I mean not in a lazy way but it is physically impossible to get up before 9am. I suffer with headaches very badly if I get up too early x

[Manofmendip]

Hi Kelly

Sorry you are feeling rough.

I am too, even on Fragmin I'm going through a spell of recurrence of my 'funny turns' and also wicked headaches. Like you I find it very difficult to wake up in the morning.

What medication are you on and who is managing your APS?

Best wishes.

Dave xx

[xxkellywxx in reply to Manofmendip]

No one is managing my APS because they don't believe I have it, I am basically taking things into my own hands by taking aspirin at the moment. They don't believe it's APS because it is not on their systems, turns out the hospital forgot to put them on! But they put down that I also have a Factor 5 Leiden too. xx

[Manofmendip in reply to xxkellywxx]

Kelly, where are you from? You really do need to get to see an APS specialist. Dave x

[xxkellywxx in reply to Manofmendip]

I am from Wales x I have been put on a waiting list to see a blood specialist but it seems like forever!

[Lure2]

Hi Kelly,

Hope you find an APS-doctor! I have APS and have had MRI clear. We have on this site found that the the neurologs do not understand our symtoms as the rheumatologs and hematologs do.

I can understand how bad you are feeling. And when your father does not understand what is wrong with you.

Hope you find someone soon that can help you out of this.

Kerstin in Stockholm .

[MaryF Administrator]

It is vital wherever you are located that you sort out your care, if things are not moving forward fast enough or professionally enough, perhaps self fund for a one off appointment taking with you any test results or letters you have received in the past. Also try ringing the secretary to the consultant you are supposed to see, state that you feel you can't wait and are prepared to tag on the end of a list and wait or take a sudden cancellation, I always operate like this, both for myself, my siblings and my children! MaryF

[happee1]

hi kelly, yes i feel exactly like that when i am in a flair..it is hard to get in gear and forget about the concentration..i just go with it until it calms down again..i hope you see your doctor soon..it would be best to see a rhumatologist doctor..

[Hidden]

Yes..I feel this way when I have a flare....except for the headaches....I am "prescribed" Aspirin 320mg for APS; but I find that when I have a flare up I feel better if I also take Advil or or a similar anti-inflammatory....My RHeumatologist says it can't hurt.......Re: Md.'s.....not sure how the UK medical system works....I am one of the fortunate folks here

in the US who has excellent medical insurance (hopefully "Obamacare" will make medical care more widely available at affordable prices).....all this aside......I recommend seeing a RHEUMATOLOGIST WHO SPECIALIZES IN AUTOIMMUNE DISORDERS....or in the least understands ......I have found the Hematologists look at the trees and not the forest....