Does anyone have/ had eye problems linked to Hughes!

[panda60]

[jetjetjet]

Yes i have problems where i lose some of my field of view ,also hazy vision and also i am on hydroxychloroquine 400 mls per/day and i have to have my eye's checked every 6 months.

[Hidden]

I have mild Sjogrens so my eyes are very dry. I use lubricant drops to keep them comfortable.

[GinaD]

Before I was diagnosed and treated with warfarin I had a series,( or one recurrent?) of tiny clots which damaged one part of my visual cortex. I was not keenly aware there was a hole in my vision because the brain automatically stitches in what you expect to see. I did find that bifocals were not working-- I kept mis-reading, interchanging words like " house" for " horse.". ( Kind of like living inside an Apple auto spell correct program.)

Eventually a visual field test was run. (NB: this test involves staring at a central point of a white field, while pushing a button whenever you see a blinking light in the white field.) And the test showed one region where I never saw the lights-- evidence of damage in the brain as the gap was in both eyes, not one.

I don't know if this post helps. But an ophthalmologist should be able to help you narrow down the source of your problem.

[stillwaiting]

Yes I have had dry painful eyes, blurred vision, and have lost colour vision a few times. All this is much improved since I started warfarin.

Lynn.

[rlupus]

Hi yes i have problems with vision , painful, blurred vision, and very watery , and night driving is awful now , i am on warfarin , plaquinal, and loads of other meds.I have my eyes tested every 6 months and have quite strong lens in my glasses.

Keep well .

[beautymonster85]

Not sure if it's related to Hughes or that I'm on Coumadin for life now, but when my level gets dangerously low, I'll have blurred vision in one or both eyes and have to go to the Emergency Room for a shot of thinners, Lovenox usually. Night driving is terrible post strokes and I have trouble with my balance and coordination most days.

[Leigha]

I have Sicca (dry eye syndrome). Don't know if it's related to Hughes or not, as I also have chronic fatigue immune disorder and other autoimmune disorders. However, with so many answering here, there may be a link?

Leigha

[Lure2]

Me too. I have all like above but much better on warfarin. Can read now. Happy for that!

Kerstin

[zonker]

Yes, this was the final puzzle piece to my APS diagnosis years ago! I was suffering from "aural migraines" (wrong diagnosis) with all the visual problems listed above for years including blindness in one or both eyes. Then had my eyes checked one year and was sent "upstairs" to the specialist. He discovered something wrong with the optic nerves in BOTH eyes which was unusual for a 40 yr old and rapid changes. They sent to Atlanta, (major hospital) to see a famous Neuro-ophthalmologist. She ran a battery of tests that discovered I had thick, sticky blood. Been on warfarin ever since. My optic nerves have remained stable. Only get visual disturbances now if I am very very tired or my number is very low. I do have other symptoms of APS/Hughes but this was about the eyes. Robyn

[fitzyc]

hi have aps ..loads of symptoms but do notice every now and again have double vision when i close 1 eye perfect and same with other1 , so to hide it when driving have to close one eye..dont happen that often as on warfrain now.

[tim47]

Yes, me too. Often dry and uncomfortable but when given the blotting paper test , for SS, degree was not accepted level for SS. Use artificial tears of various types. No problem during first forty odd years of Hughes, only last tree or four years. Dry mouth too

[Davideccroft]

Hi, yes, I was diagnosed HS after a central retinal vein occlusion in left eye left me with greatly reduced vision. I have peripheral vision in that eye but a "hole" in my vision for some of the middle part. Can still juggle, but get eye strain if too much vdu work as that was my dominant eye and not good enough to read with it as letters disappear when I look at them with my left eye. The worst thing was all the eye tests. I didn't drive again until I took my advanced driving test again. So I'm lucky it wasn't a blood clot causing more issues. Mustn't grumble.