Hi everyone, been on that rollercoaster again. Son unfortunately vomited through his tracheotomy last Tuesday whilst his PEG feed was running. He seemed ok but come Thursday all his stats were alarmingly high requiring hospital admission. Diagnosed with aspiration pneumonia & started on strong IV antibiotics which he responded to really well , bloods, stats & chest cleared & was discharged back to Hawthorns this morning- this is one very strong man. Apart from this latest health setback he has been very stable & engaging well with therapy team - little gains are happening which is so uplifting for him, us & all involved in his care.
Another up, this afternoon I attended my post surgery appointment & my consultant very happy with how operation went & my recovery. Just need yearly blood tests to ensure my liver function hasn’t been affected - possible due to trauma of narrowed biliary ducts & scarring due to my condition but I am classed as at very minimal risk.
Looking back over this year we have been jumping on & off that rollercoaster but not as many times as the two previous years so we will continue with a positive attitude & hope.
Wishing you all a good Christmas and a happy & healthy New Year - and thank you for being there.
Take care Nanapal. x
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Nanapal
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Hello my dear friend, you certainly have one very tough young man, who despite everything bounces back, he’s got age on his side and your strong genes. I wish you both a very merry Christmas nanapal, and all the best wishes and lots of good luck for 2024, lots of love Alice xx
So sorry that you went through that frightening time, but glad that he pulled through and that you've been seeing gains, and that you have recovered well too Nanapal, Wishing you a health and happiness in the New Year x
Unfortunately son developed a urine infection on Xmas eve & not too well with it. On antibiotics & extra flushes to try & clear through ( has catheter). He doesn’t get a break poor lad.
He enjoyed seeing us & his son yesterday so that will hopefully have brightened him up.
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