My partner suffered a severe TBI and Hypoxic brain injury in November last year and has remained in QE Birmingham ever since, he has had great care there in the Critical Care unit and then on the ward, but has unfortunately remained in a Vegetative State since a few weeks after the accident.
The powers that be deceided at the end of last week that John no longer needed to be at the QE but should go to our local hospital.......bad move, when I finally got to visit him they have put him in a totally inadequate side ward with no windows for light and orientation between day and night, and worst of all no fresh air. The nursing care there is unfortunately not what he needs.
We are in a position where they dont really know what to do with my partner, he is not ready for rehab, but on the otherhand he is not benefitting from being left on his own in a hospitla bed all day!! Its a scary road we are travelling at the moment, feeling at the mercy of the NHS and what they decide to do with him, it feels sometimes like you have little or no say about your path of care.
My life feels like one long battle at the moment, the road we are taking has so many twists and turns, hopefully one day we can get to a destination we can all relax and be happy at. Its sad to think that my lovely partner, once so happy and full of hope for the future is now lay in a hosptal bed, unable to communicate with myself and our children. Life can be so cruel!