The last time I posted was over 12 months ago, although I read the daily news feeds and posts every evening and take inspiration from the posts of BI survivors and families supporting loved ones with a brain injury.
Today I took Josh for his 6 month follow up with his Neurosurgeon and he has been discharged which I am fine with as he did not need surgery and thank God has not any seizures. He will remain under the care of his rehab Neurologist.
During the appointment we discussed the window for recovery and he advised it was about 2 years.
Not to repeat my original post, but Josh had learning disability pre-accident. This was mild and centered around his communication skills. Due to his accident (Being run over on a zebra crossing) his resulting injury was a diffuse axonal brain injury and he was lucky to survive. He had a subarachnoid hemorrhage and a parafalcine and tentorial subdural hematoma.
He spent 12 weeks in rehab (mainly due to arguments between social care and the continuing healthcare commission) as to who would fund his care package when he came out. I work as does my husband and pre-accident Josh could be left alone, was independent to travel in our community and going to college.
Now we have Mencap support workers whilst we work, and Josh attends a day centre 3 days a week. We have been advised by his Rehab neurologist that he can never be left alone or go out by himself again, this was devastating news in March, but we have held onto the hope that he is wrong.
Due to cuts in social care and the learning disabilities services his original physio and speech therapy has stopped as there is only one to serve hundreds of service users, therefore its down to us to continue the exercises he was given and to practice his speech daily.
We are pursuing a civil case against the driver, (his insurers) unfortunately as the police did not press charges due to not enough evidence for CPS the insurers are playing hardball and although under codes of conduct could have released funds to support private rehab have chosen not to do so.
My concern is that it we are now 13 months since his accident and although we can see improvement in some area's, he still has balance issues, fatigue, damage to his vision, lack of insight into his abilities post accident, problems with his speech, change to personality (gets angry and upset really quickly) and mental health concerns - saying he wishes he had died.
His IQ has been retested and the overall score remains the same however, his processing speed index which was his strength is now his weakest area and this is the concerning part for any future independence.
I am not expecting a miracle, I know and accept even though it breaks my heart that we will not get the old Josh fully back, but I want to give him every opportunity to get as close as possible.
I suppose at the end of my long and wordy post I am asking is 2 years it?