bleak news: my husband had his scan today and met... - Headway

Headway

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bleak news

Lunalg profile image
8 Replies

my husband had his scan today and met with surgeon tonight who had said he is expecting my husband to do more at this stage. It all sounded pretty bleak and he wanted to have a conversation about what my husband would want on Monday. Shouldn’t they give him more time???

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Lunalg profile image
Lunalg
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8 Replies
Leaf100 profile image
Leaf100

Sorry to hear you are going through this. It's tough stuff.It's not something I have experienced. Give Headway a call, the number is to the right under their pinned post.

They should be able to direct you to resources, information, etc etc. They may also be able to help you get a clearer explanation if you need one.

Keep us posted

Leaf

cat3 profile image
cat3

Sorry Lunalg ; not sure I understand. What were the results of yesterday's scan... and what did the surgeon mean by 'What your husband would want on Monday' ?

I'm confused that only around a week has been allowed for progress before he's giving negative comments.

Sorry if this seems intrusive ; really feel for you. Only reply if you feel up to it.

As Leaf suggests, maybe phone the helpline on 0808 800 2244 for professional advice and support..

Thinking of you both.. Cat x

Lunalg profile image
Lunalg in reply to cat3

Sorry Cat. I’m a bit all over the place. I didnt take advice given here and didnt take all the info in but the surgeon wasn’t as positive as we were all hoping. It’s been 6 days since his accident and they were expecting more by now. Is there any hope?

cat3 profile image
cat3

There's hope so long as you're not given a reason to believe otherwise. The most competent surgeon cannot predict the outcome from brain injury without proof of irreparable damage.

What were the results of your husband's latest scan ?

You will be in a state m'love ; that's inevitable of course. But every patient is unique and reacts very differently from another.

My cousin came though a serious head-on RTA after being comatose for many months. Her father sat with her for hours, daily, telling her about stuff at home, stroking her hands and playing her favourite songs.

Hang in there, and don't forget to speak with the helpline for advice and reassurance..

Love & hugs, Cat x

sca2013 profile image
sca2013

Remember that is one doctor's opinion based on what he knows and does not know. How accurate his opinion is as it relates to your husband and his specific set of circumstances and the actual related outcome is not absolute. You may want a second opinion. Overall if your gut instinct is different that the opinion you're hearing don't negate what you may be sensing. Six days post injury is a very very short time to make an overall proclamation as to the end outcome of the situation. Taking things one day at a time and sometimes one hour may be of value for you as things are going right now. I am very sorry you and your husband are having to go through this. Wishing you the best outcome possible in your situation.

Sorry to hear this news. My partner wasn't having the reactions they wanted and they told me there were negatives in how she eventually started to react. Her movements weren't normal. It also took 3 days to wake her up which is super long when coming out of an induced coma. This got them worried also. She has ultimately had an amazing recovery. It does seem early days to be talking like this but they may be just covering all scenarios. The doctors talked to me about all the possibilities, and what my partner wanted was part of that while she was in the first week of her coma. Fingers crossed for you all.

Levishaggy profile image
Levishaggy

Hi lunalg my son was in benidorm when he had his accident we were told it wasn't looking good,we were actually told after 3 weeks that his life support may have be turned off the day after the head of icu said that was not happening as there was some brain activity ( we were so confused especially being in a foreign country) 2weeks later our boy was taken of life support took a while but he woke up. He is now back in the UK, he is in a neurological unit. He can walk he has started eating ( although he will eat anything he can find) he has just started using the toilet by himself. He cant speak but is trying. Since April we have been on a roller coaster but we have now nearly got used to the way our son is now. Please never give up hope. When i visit my son he gives me the biggest smile it melts my heart.

Alibongo60 profile image
Alibongo60 in reply to Levishaggy

Hi Levishaggy, I’ve wondered where you’ve been and how you’ve been doing, pleased to see your now back in the uk, that must make things a lot easier, language wise, and you seem more content. I hope your son continues to progress and as you say never give up hope take care love Alice xx

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