Skull Deformity due to Cerebral Palsy Hemiplegia O... - Headway

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Skull Deformity due to Cerebral Palsy Hemiplegia Occipital Bun/Protusion/External Occipital Protusion) What exactly is wrong with me?

Deformedskull99 profile image
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Hello I am currently 22 years old. I have always had a very large head and have being teased about it mostly light heartily my entire life. I was born premature with mild cerebral palsy hemiplegia in my left side which I believe affected my skull shape/development from birth.

I was always severely overweight most my life but in the past year or so I've made a solid effort to lose weight which I have been happy with my progress personally.

As a result of this I have become much more aware of my appearance and I feel that my skull size especially from a side profile on my left side is completely disgusting I don't know what's wrong with me. I've noticed ever since I was about 15 I had a bony bump on the back of my skull which I think is an occipital bun/external occipital protrusion. However I did not know how prominent it looked on one side of my skull especially from a side profile.

I've finally started to feel some confidence in my appearance and I've noticed this. I'm also experiencing male pattern baldness/alopecia on the sides of my head. Due to genetics and stress I'm currently prescribed finnasteride starting n December 2021

My skull is a major deformity and I don't think I'll ever be happy with how I look due to my deformed skull shape no matter what I do I can't fix my deformed skull.

I just want a clear identification of what exactly is wrong with me and if there is anything I can do to resolve it. I've thought of going to my GP but I don't think I'll be taking seriously complaining about a deformed occipital.

I've been very down and depressed lately due to this situation as its not something I feel is fixable I'll be a freak forever.

I apologise if the photo provided is poor or harsh on your eyes.

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Deformedskull99
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cat3 profile image
cat3

Your issue sounds quite unique m'love and needs to be diagnosed and explained to you by an appropriate physician . So I strongly suggest you contact Headway's helpline for professional advice, and guidance on how and where to get the help you need. Sorry but I'm out of my depth on this.

Please phone the helpline today on freephone 0808 800 2244 during office hours ; they're a great team and will do all they can to help you or to point you in the right direction.

Good luck and let us know how you get on... best wishes, Cat x

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