Hi everyone. I've just recently found this site and have found reading the posts very helpful. Like others have said it makes you feel not so alone. I had myour bi on 3rd September 2017. I was rushed to hospital and had to have all the front of my skull removed. I was unconscious in hospital for 3 week's. I was then moved to a rehabilitation unit, where iv spent the last 7 weeks. I came home on Monday. Iv been wanting to come home so much but now I'm here I'm finding it rather difficult. I felt normal in the hospital because everyone was there for the same reason. Now I feel totally self conscious about my appearance as the whole front of my head is a massive dint. I'm waiting for a date to go for a plate fitting there, which is also worrying me. I get so tired so easily. I darent leave the house. I don't know what the future holds any more and it really scares me. I'm trying to stay positive but I'm finding it rather hard. I know I'm in the early stages of recoveryour so I'm just holding on to the hope that it will get better eventually.
Recovery and finding it difficult being at home - Headway
Recovery and finding it difficult being at home
I’m sorry to hear al this, I was in hospital for almost a year and couldn’t wait to get home but when it came to me going I cried my eyes as they were like my family then I was passed round so many horrible care homes then I got my own place and they said I’d need careers to help me,so if your living on your independenty look at as a positive, if your lonely think of getting a pet,it an only get better now,sites like this will help you,try and keep positive,x
Best thing you could do is join a local BI group. Headway being main one in Uk they wasn’t great in my area but I’ve since joined a different group in Hull which I can’t praise enough. Getting to know others going through similar really does help and stops you feeling alone. Things do get better in time but you do need support from others to help you through it.
Thanks for your replies. It's good to know I'm not on my own. It's early days yet and I'm sure I'll get myself more sorted out as time goes on. I'm notrying home alone. I have my boyfriend who is totally looking after me and my lovely dog who is a comfortable to me. Things will get better I'm sure. Thanks again
This is clearly a very stressful and difficult time for you. It is lovely that you have support. They cannot know exactly what you fear and feel but their presence and good will will be so valuable. I have been struck by how many people on this site recommend mindfulness; I think it is precisely because of what you describe -- it is scary and of little value to think about the future, so training on how to keep your mind on the present seems to help a great deal.
It sounds like you have come through the acute part of your ordeal very well. I wish you continued progress and the patience that that will still require.
Morning and welcome. Of course none of us really want to be here on the forum because of brain problems but here we are...
Just wanted to add that of course it's really early days for you at the moment. Take it easy and perhaps just a short stroll for the first few days? I know that I could only manage to get to the end of the road to start with, gradually building up to a visit to the village Co op after a week or so. Don't rush it.
Oh, and perfect weather for wearing a hat so no reason for people to see your "difference" while out.
Be kind to yourself and try to do things in half hour chunks perhaps.
Have a good day!
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