Hope everyone is as well as can be! I am still a newbie here but just seeking a little bit of advice.
I am now 2 and a half years on from SAH and doing well considering the circumstances. Mine was a SAH caused by aneurysm and I've since been given the diagnosis of a rare spinal AVM which is the cause of the aneurysm.
Due to the complexity I have been told I am currently inoperable which is okay...... as I'm doing well and have recovered to as normal a daily life as possible.
Now...... the reason for my current freak out......
I have experienced pain and headaches almost every day consistently since the SAH and this is just the norm for me now. As a 28yr old this is something I've struggled with but am learning to accept and I'm getting to know and understand my limits.
But for the past 4/5 days atleast 2 to 3 times daily I have experienced a new type of pain. It is a very sudden onset headache and I suffer a chronic pain on one side of my head / temple and this also then resonates down to the base of my skull where my aneurysm is located. I do suffer pain in these areas but this pain is excruciating and is lasting between 5-10 mins at a time before leaving me tired and with neck stiffness. Other than tiredness and fatigue no other symptoms and I feel that after a previous false alarm I don't want to head straight down to A&E as I don't want to waste time and all my symptoms when searched point to migraine.
But the pain is such a new sensation and almost feels like a tearing / hot feeling inside my head.
Anyone else experienced anything similar?
I don't want to keep panicking and running for help each time I feel something strange =/ Its so tough! Also so hard trying to explain to loved ones why I'm suddenly immobile for 10 mins and at times barely able to speak through the pain