Migraines / aneurysm

[Sparkleboo]

Migraines since childhood , finally got referred to specialist , routine mri uncovered large basilar tip aneurysm , had coil and stent surgery , since coming off one of the two blood thinners I have developed kaleidoscope vision which I’ve never had before unexplainable that my “ordinary migraine “ have decreased since surgery although consultant doesn’t know why as there’s no connection between migraines and aneurysms , has anyone else had similar post op changes ?

[Hidden]

Hi, I'm PCS and had multiple visual processing issues. Is it actually geometric like a kaleidoscope or more fragmented, irregular, like moving patterns? I saw an optometrist who called this 'pattern glare'. There are a few types, it's about the ability to 'see' and process edges and lines etc. Mine was corrected using coloured lenses. (now the world is in one piece and stays still). Go to the BABO website and take it from there. It may or may not be visual but if you get tested you will be able to find out. This is private treatment, only South Maudsley hospital, London and a health authority in Essex offer this on the NHS as far as I know.

[Sparkleboo in reply to Hidden]

It comes and goes it’s usually a half circle from 12 to 6 on a clock face but alternates sides .....moving brightly coloured which makes seeing difficult when it really gets going have seen optitions and had all tests done all apparently healthy so that’s good , just seems to be something else to to have to cope with thanks for helping

[Alibongo60]

Hi sparkle boo, I also used to have bad migraines, including visual disturbances, and have a large basilar tip aneurysm, no one has ever connected the two, but does make you wonder. Hope your feeling better after surgery, I too had stents and coils, and recovered well, fortunately never had any side effects, at that time, so count myself lucky. Love Alice xx

[Sparkleboo in reply to Alibongo60]

Hi thanks for replying on the whole I’m ok but am left with residual left sided rear pain since surgery am awaiting occipital nerve block injections but due to COVID there is a delay ,hopefully that will work ,glad your ok x

[Alibongo60 in reply to Sparkleboo]

I have been unfortunate in that my aneurysm has grown, I had first surgery in 2013, and was fine until 2016 when it was found to be growing again. Whilst waiting to go back in it ruptured, and I had a sub arachnoid haemorrhage, further coils fitted, and again last year it was growing again, I am now at the point where Annie is pressing on my brain stem and possibly safest to leave well alone. I have been left with short term memory I get a lot of head pain, but count myself lucky to have survived.

[Sparkleboo in reply to Alibongo60]

Hope everything goes ok I am going for my first mra (6 month check) next week fingers crossed everything has stayed in place and nothing has altered since surgery .....

[lcd8]

Hi there. I have an AVM and also suffer from recurrent hydrocephalus due to its position. They were only found when I started to get chronic headaches aged 12. My understanding is the headaches were linked to the hydro not the AVM. But I do suspect that all this sort of thing (ie neurological stuff) might be connected.