Reassurrance plz x: Hi, its now 6mths since my... - Headway

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Reassurrance plz x

Clgn83 profile image
14 Replies

Hi, its now 6mths since my partners hypoxic brain injury.... He has come so far.

He does have cognitive issues, remembering five minutes ago is hard work for him.. The rehab therapists are teaching him stuff daily that he forgets the following day, ie - sit to stand...

The therapists dont give us much hope, Im so worried.... reassurance plz x

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Clgn83 profile image
Clgn83
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14 Replies

6 months is no time at all. Don't give up hope, he has obviously done well so far, but it is still early days. Keep doing all you can, play his favourite music, perhaps show him photos (and keep showing them over and over again), celebrate each little achievement.

Sending you lots of good wishes.

Clgn83 profile image
Clgn83 in reply to

Thanku xx

Hi Clgn welcome to the forum, it is so difficult to watch a love one go through such a huge change in their life and trying to get some normality. Unfortunately its time and patience but also accepting that things will never be as they once were. It will be hard for you both, he is getting support, but don't forget about yourself in all this. You can always chat to any of us, and their are local support groups and the headway helpline.

Sorry if I'm waffling, and I hope some of what I've said makes sense :-)

Clgn83 profile image
Clgn83 in reply to

Thanku xx

in reply to Clgn83

We all help each other here so you can always chat to us :-)

cat3 profile image
cat3

Bear in mind Cign that health professionals are reluctant to commit to a prognosis after a brain injury and often opt for quite negative predictions.

Six months isn't long in terms of rehab, so stay hopeful and keep on exercising & stimulating your partner's brain in every way you can think of ; it's too early right now to be giving up on hope. Best wishes to you both, Cat x

Clgn83 profile image
Clgn83

Thankyou, i am positive, i stand by my man and i no what he is capable of, But when im sitting here in my own thinking, the worry of "what if their right" Im just scared and miss him so !!

cat3 profile image
cat3 in reply to Clgn83

Whilst there's still uncertainty, best to work at distracting yourself when the 'What ifs' start niggling. Over-thinking won't achieve anything other than anxiety (and anxiety is SO draining).

Time will tell, eventually. But for now, concentrate on your own wellbeing to keep yourself strong, and keep on doing what you're doing to try bringing your partner back. It's a waiting game which won't be rushed, and it must be agonising for you ; I'm really sorry for your predicament Cign.

We're always here m'dear ................. Cat xx

Barnie100 profile image
Barnie100 in reply to Clgn83

Hello Cign, I understand you being scared and think your husband probably is too but as everyone has said it is really early days. I found Headway so helpful for us, after I had my brain haemorrhage. Do contact them. Although the recovery can be slow, keep hopeful that you will see great improvement over the coming months. I had no short term memory when I first came home and didn't know what I was doing, now I can walk out on my own, without getting lost. It just takes time and patience. Please contact Headway, they really will help you. Best wishes to you both xx

Clgn83 profile image
Clgn83 in reply to Barnie100

Thankyou xx

Josnuggler profile image
Josnuggler

I get it. Having watched my partner go through the agonising path to recovery I know just how hard, long and incredibly worrying it is for the partner. But, each day is a step closer to establishing a new normal. Yes, it hurts that he might be different in many ways but over time, and with the right support, you can build these changes into your life together. It won't come easy or quickly, but it will come.

In the meantime, just like Cat said, take care of you. Breathe. Laugh. Love. Give thanks that he's still here fighting and take pride in yourself for being an amazingly strong person .x.

Take care .x.

Jo .x.

Clgn83 profile image
Clgn83

Thankyou Everyone xx

jayne_h profile image
jayne_h

Another thing you can try is diet if possible. Get a copy of Tina M Sullivan's Nourish your Noggin which is the diet companion to Dr Diane's treatment for PCS. This is a different injury but it might help. Worth a try. You could try some home made smoothies with berries and a bit of tumeric and dried ginger or cinnamon with almond milk or coconut milk and take them to him. Coconut oil (the raw organic type which you can get in some supermarkets eg Tesco and Waitrose) is best if you try that one. You can put a bit into a smoothie. It has lauric acid which is said to have brain healing properties. He can have 2 squares of pure dark chocolate a day. Avocado is also good. I used the diet tips for my mum.

Take care and I hope he improves more. It takes time. 6 months is not so long.

xxx

jayne_h profile image
jayne_h

Maybe you can also make him some posters and drawings of important things so he can refresh the information the next day? I did this at home for mum in the weeks after her accident. Pictures help. So do labels on kitchen cupboards and similar.

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