Plz help

[Ollymitchard1985]

How do I except that I have had a t b I seems so hard to admit

[RogerCMerriman]

It takes time to admit, as with everything it does depend on the person and the injoury, even with my in comparison minor injoury took time to realise the damage or at least the one that mattered was to my brain rather than bone.

[Julesgettingthere in reply to RogerCMerriman]

.... thats what I am learning

x

[Ndanya]

Im looking forward for the replies.. I dont i realize i do..

[Kirk5w7]

I remember the moment when it dawned on me in the hospital that this was for life. Devastating, and I cried a lot at that time, but time passes and I've come to terms mostly with my problems, they could be so much worse.

It's not easy but I get out on my own and I just adapt to what I can do .

I do have times that I think can I live the rest of my life like this? But what's the alternative?

I have a loving and supportive family, I owe it to them and me to be the best I can so I haul myself out of bed each day and make the most of it.

I remind myself of the times I was told, by one consultant I'd recovered better than others he'd seen with the same problems and when my GP told me my recovery was down to my determination, all done without really realising it so my will to get better must be very strong, who am I to deny myself the chance and who knows one day soon I just may make further improvements.

So, it's up and at'em again today.

Best wishes with your recovery, you can and will work through this we're right behind you, the safety net is in place, don't forget we're here. Love Janet xxxxx

[Ollymitchard1985 in reply to Kirk5w7]

Janet your message. Was lovely. Thankyou so much just wish it was easy to accept

[Kirk5w7 in reply to Ollymitchard1985]

I wish I could wave a magic wand for us all xxxx

[Ollymitchard1985]

Thankyou

[Hidden]

I WEAR MY BI WITH PRIDE. IT SHOWS ME HOW FAR I'VE COME. EVEN IF IT'S ONLY FOR ME I KNOW WHAT I'VE ACHIEVED.

IT WAS SCARY WHEN I SAW THE WORD EPILEPSY WRITTEN AGAINST MY NAME FOR THE FIRST TIME BUT I KNEW THE NEURO WOULD BE THERE TO SUPPORT ALL MY AFTER EFFECTS WHICH HELPED NO END.

WE SOMETIMES DON'T REALISE HOW STRONG WE ARE BUT I ADMIT I HAVE DAYS WHEN I THINK I CAN'T DEAL WITH THIS FOR THE REST OF MY LIFE. A KIND WORD FROM MY OTHER HALF OR THE WONDERFUL SUPPORT I GET HERE HELPS ENORMOUSLY.

BEST OF LUCK IN YOUR RECOVERY.

[christophee]

In the early days it is scary, but time is a great healer (as the old cliché goes). This may seem like it trivialises what is a massive event, but after my TBI and shunt insertion I came to realise they will always be there and just live my life forever thankful that I got a second chance. Remember for us with BIs, we have overcome more than many people ever have to in their lives, especially with learning about life (and skills) for a second time.

Never give up; however dark it can seem at times - with persistence we can achieve much, however small it may feel in comparison to what we have known.

All the best for your journey.

[Tortie14]

Just working on this myself - it is slow - just as realising the impact of my accident - still puzzling it out. Information helps me and sharing here where I am understood is a lifesaver. I think it's going to take time just as recovering from BI is a slow process and a voyage into the unknown. Encouraging to hear how others have managed to rebuild their life with it's new realities.

[Hidden]

After my TBI I was told absolutely Nothing had at least 10 years of hell but just got in with it (lucky I was not in a mental hospital ) Told last year I had had a life threatening brain injury at time of the accident

Now I can't cope with it

[Sem2011]

the million dollar question! My path was denial for a long time. I was admitted to hospital after a fall, and CT showed small haemaorhages over three parts of the brain. I was under the care of general surgeon, did not see a neurologist at all, or referred to one!!!. Had follow up appointment with general surgeon and this point he gave me a Headway card with no explanation and said it would be a while before I would go back to work. Headway broke the bad news to me. I had a couple of real low points in the last 3 years, but as others said what do we do? We have to carry on with our new life, our relearning, well we could give up and become an alcoholic, depressed, start using illicit drugs to numb the pain, but BI is still there the next day. Irony being ot BI people cannot tolerate alcohol . I am wittering on now, but time does help, surround yourself with positive people, acceptance does come, but it is hard. Only us BI injury people know how hard it is to live this, only us know this path and how strong you are to survive this. Those carefree days will come again, when you will enjoy a time with friend or family, or enjoy a film, and think WOW I have not thought about my BI for two hours. Those times will come more often, but it is having the strength and determination to get better. obviously it depends on the extent of injury but I do believe we can make steps however small and improve. Brain injury is a slow recovery. I was told off once at a Headway support group for wanting to rush my recovery, but what is wrong in that. patience is needed in recovery. I keep a diary and I was sleeping 18 hours a day and lost 2 stone from brain using calories to repair. Today I can sleep 12 hours on a good day. I can have a night out if I pace myself, which I could not do 12 months ago. I'm here if you ever want a chat. Keep strong, yep I still cry sometimes but it does improve. James Cracknell was a great inspiration for me. There was a man whose head was split in half and his family called to say goodbye. he is running for euro MP.

[Ollymitchard1985 in reply to Sem2011]

Would love speak more thankyou

[Danslatete]

It took me a while to accept there was a problem. I cried and raged and pushed beyond the limits over and over again!

I crashed and burned so many times determined to prove them all wrong.

When I finally stopped and listened and took notice and did things in a more ordered fashion at a much slower pace I found I made better gains.

It does take time, try to be patient!

[Ollymitchard1985 in reply to Danslatete]

Thanks so much

[Winb143]

Hi

I had a SAH in 2009 followed by ventriculitis and then Sepsis, so I remember nothing for a year.

My Family were told by PT's "Have you thought of putting her/me in a home as she will never be the same" Well 4 years on and a shunt fitted in 2010 I can walk approx. 100 yards(seems small but to me it is a massive step). So all of you who are having trouble, keep strong and never stress as it does us no good. We have made it past the first step now sing as life is good xx

Good luck to All

WinB143 xx