I have had some amazing incites about dealing with my ABPA and am so grateful that I have found this site. I am on itraconazole and Prednisone. I was given a short term Voriconazole (4wks) and worked down from a high dose Pred. Asthma, wheezing and congestion returned. Now on Itraconazole and down to 20 mg. Pred. (third high to lower dosage)...realize that should not have been taken off Pred. altogether until on anti-fungal at least 3 to 6 months with levels showing it is working. I just had my levels done after 1 month...and have not seen results yet but my breathing is better. I feel as if my Pulmonologist is just not that familiar with this disease and he has been amazing treating my bronchiectasis but I feel I need a specialist in managing this difficult balance. I live in the US but would come to Manchester ... is there a procedure that is required to do this. It would ease my mind because I am daily realizing things were not done properly for my treatment...I think I am on top of it now but would feel better speaking with experts in the field.
Please advise and thank you.