chronic cavitary pulmonary aspergillosis

Hi there my husband has been diagnosed with chronic cavitary pulmonary aspergillosis , he is 74 yrs of age . I seem to have become more is carer than his wife . he has been ill since last october . He has lost 2 stone in weight , doesnt want to eat , is in pain most of the time , in his lungs head and chest . He has numerous blood tests , 2 lung biopsies , xrays ct scans before ccpa was diagnosed a couple of weeks ago . He has started a course of Itraconazole , initially for a 3 month trial , with weekly blood tests to make sure he is tollerating the meds .

I have this week applied for attendance allowance for him , has anyone else tried to get benefits for this disease and been successful ? would greatly appreciate any replies .

4 Replies

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  • Hello, my husband has just had biopsies done on the lung for aspergillosis - it's a disease that people have never heard of - I certainly never knew it existed until we started on the journey of trying to find out why he was pesistently coughing, breathless in pain and shattered all the time.

    My husband is 63 and I am 55 and like yourself I feel I have become his carer.

    It has been a positve move finding this site and reading about other people coping with illnesses.

    While having a bronchoscope this week they found a poly in my husbands throat and urgently he has now been referred to ENT dept - more worry more stress

    I wish you and your husband well and send you warm wishes.

    Someone told me to make sure I took care of myself - easier said than done when my first priority is my husband.

    Marion x

  • Thank you marion for replying , my husband had a bronchoscopy too , they found cavities in my husbands left lung . cant believe that just 6 months ago we were going on 10 mile hikes and now it takes it out of him walking round the house . I am hoping the medication will begin to make him feel beter soon . But am doubting that we will ever do our beloved hiking again . This disease has whipped our lives from under our feet . Hope you go on ok with your husband .

    Linda xx

  • The British Lung Foundation run a very helpful phone service for this purpose

    nacpatients.org.uk/helpline

  • Thank you Graham for the reply , we have been successful in obtaining attendace allowance , it will certainly help .

    Linda

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