This may be a long post but I think it's only fair to give anyone who's kind enough to read and comment, the background and a bit about me. Ok, here goes:
Female, mid 40's, diagnosed with Type 2 Diabetes two years ago - no meds and diet controlled from diagnosis. I have hypertension (high blood pressure) and have been on a few meds for this - currently on Felodipine and Indapamide which is a diuretic. I've suffered on off over the last 2-3 decades with depression as well as stress related symptoms and anxiety (some exacerbated by life events). Although I also take Amitriptyline this is for pain relief at night and I've not been on any medication (specifically for depression) for about a year or more.
About a year ago I had a burning, tingling sensation just below my knee and part way down the front of one of my legs. My Dr suspected nerve related pain and prescribed gabapentin. Due to discomfort and pain, the dose steadily increased over a period of many weeks. In December last year I slipped whilst out in the garden - I was shocked and bruised but nothing felt broken so never got checked. I did hit the ground hard and hurt my head and neck a bit as my legs literally went from under me.
January - I had suspected chicken pox / viral infection. And from there I have just gone downhill with little respite (other than from around mid May to July) - I've been feeling very cold when the room temperature and other people are fine. Ironically, I was often the one that was hot although it may not have been that hot!!! This ended in me becoming severely fatigued, suffering with insomnia and having periods where I would then sleep for hours, cold clammy sweats, legs being cold and stinging and stinging with coldness. I got signed off work for a short period in the Spring due to this.
Several blood tests were done to check for those "testable" conditions i.e. thyroid, anaemia, iron levels, full blood count, etc - all normal or satisfactory. GP then referred me to neurology - it took 5 months for an actual appointment and to be seen.
My neurologist's very confident that it's not neuropathy / diabetic neuropathy. She ordered a blood test to check inflammation markers - for lupus and rheumatoid arthritis - all were normal. I've also been referred for an MRI which is in September and she doesn't think any abnormal will show up. I guess this is just an elimination process. I have a copy of the letter she's sent to my GP and I'm rather "hyporeflexic" and the MRI is to check for "CNS inflammation".
In the meantime I'm experiencing really chronic pain again - from the top of my legs to my ankle almost - a freezing cold sensation and my legs sting with coldness. My feet and hands are not cold. The skin is cool to the touch and it feels like liquid ice is in them under the skin, or that feeling you get when it's minus temperatures and your skin tingles with the cold and pain. I'm very stiff and achy - at the moment my neck and shoulders and upper back is the worst. I also get these cold patches on the back of my neck and shoulder area now. I have a stiff left arm, especially where the elbow joint is. I can't sleep and am awake until 3 or 4am. I just sit and sob most days and am off work, signed off again.
I'm not on gabapentin anymore as the dose kept going up and was eventually ineffective. I stopped it around April time on the advice of my GP who suggested seeing if I could manage without it, as it didn't seem to be helping anyway. I recently started on pregabalin which has very quickly been increased from 50mg twice daily to 100mg three times a day.
My own GP mentioned the possibility I have CFS and Fibromyalgia several months ago (pending my neurology referral). The GP I saw about a week ago also mentioned CFS.
I've realised just how long this post is so I'll stop now. All thoughts most gratefully received. x