Severe body cramps..... please help - Foggy's "Invisibl...

Foggy's "Invisible Illness" Support

5,532 members627 posts

Severe body cramps..... please help

Jaffalove profile image
18 Replies

For the past 5 years I've been suffering with severe body cramps. It started out as the odd cramp in my leg or foot or arm, and I put it down to the fact that I was working 12 hour shifts in a hot kitchen, but as time went the cramps got worse and started affecting more muscles. When I was made redundant I thought I could take some time to get this sorted out and get myself back to work. I get cramp in just about every muscle from my neck to my toes. I am under two specialists a neurologist and a musculoskeletal specialist and neither seem to have a clue what is wrong with me. I have had blood test after blood test, iv had a MRI on my spine a DAT scan and a muscle and nerve test. And nothing seems to be wrong. And I also have osteoarthritis. The musculoskeletal specialist seems to think I have RLS, what a joke. If anyone else is suffering with anything like this please help.

Written by
Jaffalove profile image
Jaffalove
To view profiles and participate in discussions please or .
Read more about...
18 Replies
Marz profile image
Marz

Have you had your thyroid correctly tested - if so do share your results with ranges. If you have LOW thyroid then it is possible to have LOW B12 - FOLATE - FERRITIN - VITD - all of which can be the cause of horrid pain.

Sometimes the basics are missed 😴

Jaffalove profile image
Jaffalove in reply to Marz

Hello Marz, I haven't had any thyroid test done, but I will mention it thank you.

Marz profile image
Marz in reply to Jaffalove

Did you manage to have some tests done for thyroid ?

Swallowpoint profile image
Swallowpoint

Dear Jaffalove, I have never had cramps as bad as you describe--but have had them off and on for forty years. But to get rid of them I up my POTASSIUM. Some have always claimed the key is in magnesium and it might be in the balance. But with me I increase the potassium. And I mean increase it "heavy like." I now buy my potassium in powder by the one pound container and add a scoop to every quart of water I drink. I also add other nutrients and flavor the mix with pink containers of saccharin. Recently, after a year or more without a cramp I started again with "night cramps." I had changed my diet somewhat. So I upped my intake of potassium again and now have none. It took about three days. But doctors claim it is not the potassium--but magnesium-----but I have found it is the other way around. Good luck.

Eric

Jaffalove profile image
Jaffalove in reply to Swallowpoint

Hi Swallowpoint, according to the doctor's my potassium is ok, not sure about magnesium as I just get told I'm having bloods done and don't get told what they are for and when the results come back I just get told everything is ok, so really I have no idea what the doctor's have checked for or ruled out.

Marz profile image
Marz in reply to Jaffalove

You are legally entitled to have copies of all YOUR test results with ranges so you can monitor and check.

Swallowpoint profile image
Swallowpoint

If everything is O.K.---you should feel great? Since you don't ---don't believe the docs. Potassium in the hard tabs is restricted in size. To stop cramps I would have to takes eight or ten after awakening in the middle of the night with cramps. That is why I switched to buying it by the pound. I probably take eight or ten grams. But if you believe the docs--then don't try it.

Eric

Swallowpoint profile image
Swallowpoint

P.S.---But with the powder--I take a gram with each quart of water I consume throughout the day--along with five other supplements including Vit. C. ----Eric

Teri0905 profile image
Teri0905

I agree, potassium and magnesium. And lots of water. Your body for some reason is not processing these as it should. Take lots of extra potassium and magnesium, and I even spray my legs with magnesium spray every night before bed. I also sleep with old slivers of soap under my fitted sheet, and the combination of doing these things has made my cramps stop. And I was getting full leg cramps, both at the same time, and all I could do was sit there and cry for a half hour or longer every time it happened which was often. So much incredible pain! Now that I have done these things they stopped. But I do get them back if I drink any alcohol at all, so I stopped that too. Having a beer is not worth it if it brings on excruciating cramps. Hope you find what helps you. Try different things til you find what works for your specific needs . God Bless!

Swallowpoint profile image
Swallowpoint in reply to Teri0905

Dear Teri,----I certainly agree with you if you read my comments above. Personally, I get quite a bit of magnesium in my diet of mostly non-fat dry milk. So it has been the potassium increases which solved my night cramps. And the usual magnesium increases is of the form leading to "the runs!" But I have found I can add a variety of my supplements in powdered form in my daily drinking water, sweetened with saccharin. I add five powders which dissolve easily and are beneficial in quantity--like Vit C--potassium, MSM, malic acid, arginine----and it tastes like a "lemonaide." But--for forty years I have heard doctors claim night cramps cannot be helped with potassium. -----Eric in Wisconsin-USA

Jaffalove profile image
Jaffalove in reply to Teri0905

Thank you for your advice, I'm always trying out new things.

cindylou222 profile image
cindylou222

Could it be low potassium? I get body cramps, mostly leg, when my potassium is low.. I eat a coupIe of bannanas for a few days and it really helps.

Swallowpoint profile image
Swallowpoint

I have found it takes more than a few bananas. That is why I buy the potassium in powder by the pound and put it in my water as a describe above in my earlier posts. There might be a number or "many" other factors--but enough potassium over shadows most. In fact writer above mentions modest alcohol which could certainly be a contributing factor and I had not associated that. But government regulation has limited the amount of potassium in each "hard to swallow" hard pill. So--consider the potassium in powder. So much in medicine is unknown and complex. ----Eric

rory1957 profile image
rory1957

I don't have a clue other than to ask the basic: How is your electrolyte level and are you chronically dehydrated?

Sorry I can't offer more.

RCS

Jaffalove profile image
Jaffalove in reply to rory1957

Hi Rory as far as I know my electrolyte levels are ok and I drink plenty. But thank you.

Swallowpoint profile image
Swallowpoint

Dear Jaffalove----I hope some of all the comments given above have helped--somewhat?

I thought of something else. Even with the potassium keep your legs very warm. Even in hot weather. At least keep heavy blankets on your legs. That makes a difference. ---Eric

Jaffalove profile image
Jaffalove in reply to Swallowpoint

Thank you Eric, for your advice I think i will give the potassium a go. And I do try to keep my legs warm as I find they get quite cold below the knee. I just wish I could get the cramps to stop, had a really bad few days even losing the feeling in my legs and my toes feeling numb.

Swallowpoint profile image
Swallowpoint in reply to Jaffalove

And since it sounds like circulation also----(but you can have cramps without circulation problems)----remember the niacin (nicotinic acid type 500mg many times per day---and you will get "over the extreme flush" in about a week----but that will do wonders for your circulation! It reverses "intermittent claudication" for instance! ----Eric

You may also like...

Idiopathic neuropathy and bad cramps

I have been getting really bad cramping in my calves and feet for the past couple of months. Could...

Help please, I don't know what I'm dealing with!

the neurologist said that my problem did not have anything to do with my brain or my spine. Blood...

Please read, I’m desperate for some help

feel when coming down with the flu. I have had so many bloods done which all came back normal, apart

Looking for help with isolation and symptoms please

progresses. The last two months I’ve started having these full body muscle spasms that are quite...

help suggestions please x

the bone for more room for the nerve but still no changes I’m getting so desperate and so tired of...