I am sorry for the long Post. I am literally at my wits end. For the past year I have been experience a number of symptoms. The main one being tingling and numbness in my arms and legs as well as jerking, twitching and muscle spasm. This has been constant. I have had a few episodes where it will all of a sudden come on as an episode where I will shake as if I have low blood sugar and I will lose feeling in my whole body and become disorientated and dizzy. For the past few days I’ve been feeling like I’m struggling to breathe as if someone is sitting on my chest but this has been intermittent.
Other symptoms have been: dizziness, Itchiness inside head, limbs spine, Crawling under skin & like being tickled by hair, Headache After I eat, cough coming and going, Blisters inside mouth, Lymph nodes up,
Shooting pains, Numbness in fingers, toes and face
Stuff muscles, affecting mobility, Slurring and mixing up words, Nausea, Extreme pain like band around waist, only let's up on rest, Extereme fatigue, Bladder irritation, Diarrhoea/constipation intermittent amongst others.
I have had MRIs and have been told I don’t have MS and blood tests that have apparently come back clear. Despite this being debilitating doctors have given up on me and said I will learn how to manage my symptoms and actually said “you are what is called a medical mystery”. I don’t have anxiety, well I do but related to being so ill all the time. I worry constantly that I am going to die or end up completely unable to look after myself. I cry to myself often when I’m alone but have been putting on a brave face to everyone else. I can’t do it anymore.
I don’t know what to do next or what I can ask the doctors to look at that may have not been looked at before? Has anyone else experienced this? I have read that MS can often take a very long time to diagnose and people are often misdiagnosed. To be honest, it’s not so much that it could or could not be this but it’s more the not knowing and feeling like whatever it is is progressively making me worse. I cannot take this limbo anymore.
Lots of this may seem like babble but I’m probably 1. Desperate 2. Emotional and 3. Tired of it all at the moment.
Thank you for reading.