I have non diabetic PN now for the past 4 years. Have all the treatment available which meant 2 stays in hospital for HIG transfusion and Blood cleaning. My neurologist has told me there is nothing more to try. I am on 1200 mgs of Gabapentin + 100 mgs of Lamotrigine + up to 8 co-codamol a day. Some times the pain is all over, neck arms feet and legs hands and both sides of head and face. Like water running down my back along with pins and needles This is now affecting my balance at times. I also have a low platelet count which I get a weekly injection of 240 mgs of ROMIPLOSTIM. Night times is unbearable at times cannot stand the itch in my legs and any sheets touching my legs or feet. Cannot make any plans because I don't know what the next day will bring. Life is now becoming unbearable at times. Sorry for all my moaning but any help or advise would be helpful. Without the help of my wife I feel I would not be able to carry on. Here in hope for a replies. Thanks.
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