Re... Blog if I can get well so can o... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Re... Blog if I can get well so can others...

21 Replies

FA have been on and removed the obvious link to promote her book.. So this blog is now just someone's own opinion of their health and how they "cured" themselves which is within guidelines. I don't know if the person will respond ... But please don't get yourselves stressed out about this post as there is no medical fact to back up her claims posted within this blog that the person even had fibromyalgia..... Just take this blog as someones opinion ... Some may agree with it some may not... I have my own thoughts on it .. But please don't get upset or stressed ...as I do agree the title and style of the blog is rather patronising

VG x

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21 Replies
Fibrofoggiest profile image
Fibrofoggiest

Well done VG. - I think that coming her to blatantly promote her own book is an insult, thank you though for taking the appropriate action and I too hope that people can now be calm and be reassured that the views given by an American, self promoting person, are not what should be posted in our forum. Our kind volunteers and mods will no doubt have got the situation sorted out in a proper fashion. Foggy x

Petra profile image
Petra

Well done VG thank you so much for taking the appropriate action and I too hope that people can now be calm and reassured.This forum is not for the promotion of books/links to products but is A WELL RUN AND HUGELY SUPPORTIVE LIFELINE to genuine sufferers of this illness.Thanks to them it has been sorted out adequately.Petra x A hug is a gift from person/s to eachother, one hug fits all, there are no size or other restrictions, so hug someone today,inside they might just need it to help them on their way. Petra

jillylin profile image
jillylin

Thanks VG. I am already struggling with the thought that I have brought FMS on myself without being told that there is a 'cure' for it.

Hugs

Jillyxx

jom277 profile image
jom277

It is now being scientifically backed up that there is a brain issue which causes the central nervous system to send transmitters of pain. There is no cure but maybe people can have a bit of remission.

Remember in the states you can buy your medication, so there are loads of tv adverts promoting them as miracle cures and these books fall under thst category. If there was a wonder cure we would all now be running, dancing and be able to go around a supermarket without having to lie down for 3 days.

Mdaisy profile image
Mdaisy

Thank You VG, All about making $ I'm afraid.

As VG says try not to let it upset you if possible as we don't want anyone feeling increased symptoms due to this person's actions.

Keep Calm & Drink Tea or Eat Cake or both ! :)

sue32 profile image
sue32 in reply toMdaisy

Like, like, like!!!! XX

Jo61 profile image
Jo61

Excellent - there are a lot of vulnerable people on here and making such claims is cruel, unnecessary and hurtful for many.

Thank you VG, I didn't read it all, just seemed soooo odd when I saw the first line...

Glad you sorted it :O)

Soft hugs for everyone x

CryBaby profile image
CryBaby

We appreciate you looking out for our well-being VG.

Much appreciated.

CryBaby

xxx

Thanks VG, and Mdaisy I think yes tea and cake :D

mub40 profile image
mub40

Couldnt have put it any better.Well done V.G.

Maladjusted profile image
Maladjusted

Didn't even bother to read it. anything that looks too good to be true usually is.

snowbell profile image
snowbell

Yeh was not impressed. Was v patronising and made me feel bad and angry at same time. Hate it when ppl come on here and say they are cured and are either smug or quite rude seeming to imply that if they are able to sort it we should too. Kinda imply its our fault we are ill. Assuming these ppl were genuine, we all know that fms affects ppl in varying degrees and what aids one person may not help someone else and its just bonkers to say there is a cure all out there. There rant over!xx

Malwimmy27 profile image
Malwimmy27

Glad it's been removed. I did read the blog and found it patronising, it's people like this that cause negative thoughts among those who already disbelieve us. Thanks VG.

Cat53 profile image
Cat53

I loathe it when people do that and it's all in the cause of self promoting to sell something. If that was me, and it was true I would give it to you all for free!

LouiseAll profile image
LouiseAll

Oh gosh, was that the one about the thyroid ? I just went out yesterday and bought thyroid support formula .... will let you know if it works lol :( I had hope too :(

sue32 profile image
sue32

Thanks VG and everyone else involved. We come on here for support, advice, friendship and fun. We look to each other for all this and the excellent help we get from you admin folks. I would never .......OMG! I've forgotten what the rest of the sentence was going to be!!!!!!!!!!!!!!!!!!!! Oh, well, thanks everyone, anyway!!!! XXXX

Jeniwren profile image
Jeniwren

I'm still seething at the blatantly patronising and rude attitude posted by this person. I realise that some of it is the cultural difference between the USA & the UK however to upset vulnerable people needlessly in such a manner is in my book reprehensible; especially considering the recent advances in research that indicates we may have a brain imbalance that we have no control over what-so-ever.

Sthandra profile image
Sthandra

Hi all I get that point of veiw from my father every few months “I've seen this on the the net there's a cure, do this this and this and youl b cured ” its so frustrating it doesn't matter how many times I explain it to him I made the mistake once of telling him there was a brain issue and he jumpped on it oh he says its all in your mind sycosamatic think yourself better and you will be, my older brother just calles me a hypocondriact. They seem to think that just because they've been to uni so many times and I haven't that they know more about how I feel how fibro afeckts me and how I can magicly cure myself. Sorry about spelling mistakse but I'm working one eyed today due to conjunctivitis in my right eye. Gentle hugs all round. Sithy

Jeniwren profile image
Jeniwren in reply toSthandra

I tell people it's a neurological pain condition & if they continue with their garbage that it's a brain issue like epilepsy. They soon shut up ;-)

chicme profile image
chicme

wel im l on the fence i really dont know what too say only that ive been a lot better with what im taking but ?? i really dont think you should make money out it .if it helps then so be it pass on the good news cos we all want relief at the end of the day i just wish i could have a bowel transplant been suffering so-much with a bowel blockage could not eat for 7 days been in hospital i just want peace with my body 10 steps back all the time xx

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