I am asking for a young friend of mine who has been diagnosed with endometriosis and has been told that she also has fibromyalgia as they often go hand in hand. I had endometriosis when I was younger (alot younger!) and developed fibro later. Has anyone ever experienced the two conditions as well?
Sun shining today, always makes me feel better.
yes me. I have fibro and endometriosis as wel as CFS and adenomyosis. ☹️
Hi TrikkiMy daughter has FIbro, ME and Endometriosis. She was diagnosed when she was in her early 20's. Not sure if they go together. I have Fibro but not Endometriosis. My daughter in law has Endometriosis but not FIbro.
Sorry but that really doesn't help you. Anyway sending comfy hugs to you.
Love Lilly x
Hi Trikki,
I had endometriosis, adenomyoma, fibroids and ovarian cysts. Even though the conditions were extensive, the pain wasn't really bad. The fibromyalgia only turned up about 6 years after my treatment was over.
My cousin had a similar experience/ timeline.
Yes, I have both
hi I had endometriosis yrs ago I had hysterectomy it was so bad I have fibro now and never realised that they can be linked, one of my daughter has endometriosis and adenmyosis and now has fibro, my youngest daughter has endometriosis and was crippled with pain when it flares I’m hoping she don’t get fibro also, her pains have now been subdued because she had the marina coil fitted it helped both of my daughters pains, I point this out in case it may help other endo sufferers, also having a baby can help with endometriosis my other daughter (I have 4 daughters) was diagnosed with it at a young age once she had her first baby later on she never got it back she was cured, so it definitely seems to be linked.
I was diagnosed with endometriosis approx 10 years ago, which was also 10 years after my symptoms first started. Had surgical ablation at that time.. now here I am another 10 years later with fibromyalgia. I feel dreadful on the majority of days. I now have ‘period pains’ most of the month alongside pains everywhere else. I’ve read research papers linking the two conditions before and there is a known correlation.
X
I had endometriosis when I was 40 and had a hysterectomy as a result of it. 10 years later, at 50, I was diagnosed with Fibromyalgia. About ten years later was diagnosed with polymyalgia.
Lots of problems with all of them. The fibro finally subsided but the pmr. is still active and miserable. My Sister also was diagnosed with polymyalgia at 60 years old.
.
I have both plus a few extras on top! Endometriosis suspected and then confirmed at 18 during op for ectopic pregnancy and fibromyalgia confirmed 2021 but had been suffering for several years before that. Depo provera injection was my saving grace, stopped periods and eventually pains subsided too thank goodness, won’t let them take me off it now 😂
Hi Trikki 😃🌿🌸🦋
Yes I did. I had endometriosis from puberty and fibro around 30. I developed CFS at 23. I have autoimmune disease.
Love and prayers,
EJ 🤗❤️🥰🙏🕊️🌿🌸🦋
I had endometriosis and had a hysterectomy when I was 38 I always felt I had all my health problems since then and at 55 was diagnosed with fibromyalgia as well as having rheumatoid arthritis.
I am now 60 and have recently had a heart attack and the cardiologist said that having inflammatory conditions can be the cause of the heart conditions.
I am hopefully on the mend not after having 2 stents.
Hi, I'm a little late commenting on your post, but I felt I should tell you my experiences. I had endometriosis in my teens but wasn't discovered until I was 37 when I had a hysterectomy. I had suffered for years with heavy periods and intense pain. I never had children. I went to see my GP many times over the years and was fobbed off with painkillers and being told if I got pregnant it would probably resolve my problems. I used to have regular smear tests and it was after one came back as abnormal and I was retested with the same result, I had pre-cancerous cells in my cervix, I was offered laser treatment or a complete hysterectomy. I opted for the operation and it was while performing the op that my endometriosis was discovered, they had to take one of my ovaries as well because of it. Once I had recovered from the op I was like a new woman, the pain I had suffered for many years was finally gone!
Then from the early 2000's I started getting Fibro symptoms, but didn't know about Fibro then. I got gradually worse, pain, forgetful, not functioning properly at work, clumsy etc. Again many visits to the GP until everything else was ruled out by tests etc, I got my diagnosis in 2017 or 2018.
I firmly believe there is a link between the two, but not everyone will suffer with both.
Yes - diagnosed with Psoriasis at age 12; PCOS at age 19 due to period issues and pain; IBS at age 16 after being told my issues with that was behavioural; Interstitial Cystitis age 16 after years of problems and being told it was behavioural; CFS(ME) aged 20 after Glandular Fever which I took months to recover from to a point that i could function somewhat (but never been the same since); Endometriosis and adenomyosis finally diagnosed age 22 ish - following surgery to explain symptoms and some removal. Several further surgeries for my endometriosis over the next 8 years to remove areas and reduce symptoms - bowel resections etc included- but returned everytime with avengence; widespread pain and thoughts of FMS was already present by then (age 22 onwards) but GPs dismissed me telling me there was no such thing. GAD also diagnosed formally at age 24 after a break up but in reality having had years of anxiety.
Met my husband and we had a family - luckily between all my gynae issues and being told i could not have kids - had 4 within 6.5 years! (first born a week before i turned 27)
Hospitalised with cluster migraine between having my last 2 kids and with them i realised it was that my CFS/ME had worsened and i recognised a link between pre-migraine and migraines with CFS/ME symptoms - I was now age 31-32.
Dentist also diagnosed me with TMJ pain syndrome.
Had 4th baby aged 34.
Over the following few years generalised Pain worsened and - Finally a GP listened to me and diagnosed FMS - after careful elimination of all else - Age 37 (ish)
Further surgeries for endometriosis happened which ultimately ended at age 39 with a total hysterectomy and total oopherectomy and a bowel resection (again) but unfortunately part of the uterine muscle was adhesed to my bladder and they were unable to remove that without halving my bladder and more specialist surgery - that i never got in the end. After that 'big surgery' I went in to a full on Flare of FMS and CFS/ME and migraines ...... just everything!!! Could not return to work (which was already reduced to rota weekends - 1 or 2 a month - but was an OT and had a physically demanding role as well as mentally). I am now 49, and Over the last 10 years since I have managed to add Raynauds to the list and OA and I would say my FMS has worsened though I accept it is said to be non progressive disease.
Sorry that was so long and boring probably - was not intended as a moan but as a way of laying out the correlations of so many other conditions that come regualarly along side FMS
Well done and a big thank you if you have read this far.
Right now I am recovering from Covid again and I am just scunnered with it. This is the 6th time now I know I have had it and each time it throws me into a major flare up and I recover with less than I had before.
Sending love to all xxxx
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