Do you find your family and friends don't under stand?

[Jess6]

Do you find your family and friends don't under stand what you go thought? How can you get them to under stand?

[ladymoth]

Hi Jess,

Show your family the info pages on our website - that will help for starters!

fibroaction.org

I have always found that it's best not to ask for too much understanding - ask for the help you need, instead.

Unfortunately, few people are interested in the illness of others, but if asked for practical assistance, most folks are very pleased to do what they can - it makes them feel good about themselves!

You can come to this site and moan as much as you like, 'cos we understand, but complaining to anyone else who is not a medical professional is probably not the best idea - they're not going to be interested - sad but true!

Anyway, welcome to our site - here you will find understanding and many tips on how to cope. We all have a good rant and a good laugh as well, so I hope you will enjoy yourself with us, and that you will feel supported!

Love from Moffy x

[Hidden]

Hi I have had fibro before I met my husband and had my son so yes they understand .. My friends know and know that I do what I can when I can there is also this you could show your family

butyoudontlooksick.com and look up the spoon theory

VGx

[littlemisshurty]

Well my sister has had m.e for nearly 30 years so she knows...I think mum may have fibro to so she knows my bro is nearly blind due to being diabetic for 35 odd years and an amputated toe my best friend has crohns so he's never well I don't have any other family I care about so dont care what they think I'm to tired to give a monkeys..and iv lost apart from 5friends one who has fibro...cos I can't go out when they want so they give up on you..they were not real friends so no worries there..I have a great neighbour and a lovely couple down end of cul de sac who gave me there no so I can call anytime..they are the ones who know me and care..don't worry about those who don't if they care they will listen and learn to understand.big hug x

[BenLes]

I'm lucky, my family and friends are very supportive ( most of the time). It's my line managers at work who don't understand and don't care to find out about my condition. So, they can go and soak their heads and I'll spend my time and energy on those who do Happy Easter to all xx

[Jeniwren]

My husband is great. He is so caring & understanding. Our eldest son will look up stuff on the internet to see what the latest research is. But friends...what are they???? I have none.

[Sthandra]

My OH is usually very understanding but Monday we had a blue iwas pointing out something on tv but lost my train of thought due to having a foggy day so he yells that I should finish what I'm saying before I start thinking of the next thing, I have lost count of the amount of times he's done the same thing men you can't win it seems I can't do right f doing wrong so I'm bidding in my bedroom as know he'll start on about it again he couldn't leave it alone yesterday and I couldn't escape as we had to go shopping . Sithy

[Sthandra]

That's supposed to say hiding in my bedroom .